Deans' stroke musings: Researchers: Publications and passive dissemination = “Here’s that report you didn’t ask for”.

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, October 22, 2018

Researchers: Publications and passive dissemination = “Here’s that report you didn’t ask for”.

This statement is a major problem with stroke research, everything is passive. Nothing from research ever seems to be immediately useful for rehab. With researchers not following any kind of stroke strategy NOTHING useful gets accomplished towards 100% recovery. The research mindset needs to completely change; follow the stroke strategy and create protocols from research. And that change needs to be initiated by the president of that great stroke association.
But that will never occur until survivors take over the stroke associations and run the research.
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We need to do more to disseminate and make impact- Caroline Fiennes #GEIS2018