Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, January 19, 2020

How Perfectionism Can Poison Progress After a Brain Injury

We would all be perfectionists if we had EXACT STROKE REHAB PROTOCOLS LEADING TO 100% RECOVERY. But we have shitty guidelines instead. Blame your doctor and stroke hospital for not even attempting to  create 100% recovery protocols.  What is their excuse?

How Perfectionism Can Poison Progress After a Brain Injury

Jane Connely

Have you ever heard the saying “perfect is the enemy of the good?” This truism is never truer than when recovering from a brain injury. Unsurprisingly, many people who have a stroke, concussion, or traumatic brain injury describe themselves as “type A” personalities. Shocker, I know. However, perfectionism can be a huge barrier to progress.
At first, the perfectionist personality trait really helps the recovery process. These survivors attack their exercises with a superhuman zeal. They can keep this up for several weeks, ignoring everything else in their lives and focusing completely on their recovery. This is like the honeymoon phase of therapy. Every session is exciting and you are healing rapidly in those first few months. Visible healing is always nice and it starts this great momentum, but then it slows. Sessions become more arduous as your limiting beliefs start to take hold and you get into your disability process as well as your healing process. What this means to a perfectionist is “it has been a year and I thought I would be better by now.” Does this sound familiar?
A disability process is a lifelong journey of discovering limitations and deciphering when to challenge or accept these limits. Working hard, becoming very focused on your goals and attacking challenges in your life is not perfectionism. I think these things tend to get conflated, but true perfectionism often results in procrastination and paralysis. The perfectionist discards the process mindset in exchange for a results mindset that does not fit with the disability experience. It doesn’t mean you don’t try hard. It means you try hard as hell without immediate results.
The perfectionist in rehabilitation often burns bright in the beginning and then flames out fairly quickly, as a result of these four bad habits:
  • Intense focus on the time frame of their healing.
  • Inability to integrate former and current self.
  • Lack of mental flexibility
  • Lack of self-compassion
Putting a time frame on your recovery and measuring your progress daily is akin to watching water transform from room temperature to boiling. Your focus does not make it boil faster. Let your doctor and therapist worry about arbitrary degrees for insurance reimbursement. You do not have to immerse yourself in the weeds. You have enough to worry about and it is more than a little frustrating to watch the needle move five degrees forward and ten degrees back. Recovery is not linear and time is a linear measurement.
Integrating your former and current self is a topic worthy of a lengthy novel, but for the sake of my attention span and yours, I will get to the point. I am not a fan of the “new normal.” It isn’t about forgetting who you were before your accident, but embracing yourself more fully and integrating some of the challenges and benefits of your current situation. Yes, benefits; you can learn the value of your life, who your friends are and rise above the BS of poor priorities.
The disability experience has long shadows, but it sheds light too. Mental flexibility is key to enjoying the life you almost lost and progressing into the life you want. However, it can be very hard to achieve. Sometimes as a result of the part of your brain that was injured and sometimes as a result of clinging to what your recovery “should be,” it can seem impossible. Maybe you thought if you worked single-mindedly on this one task it would become easier, but thousands of new barriers emerged. Tackle those barriers; make that other task a long term goal. Step back and have the mental flexibility to allow yourself to be both challenged and a challenger at the same time.
Self-compassion does not mean you are indulgent, lazy or destined to be swallowed by your couch. It is not self-pity and it doesn’t lead to self-loathing. It is the voice of your best friend, your kindest aunt and your truest teacher. It is the voice that says “Today was hard and I struggled, but that does not mean I am bad or that it won’t get better.” A little bit of self-compassion goes a long way toward achieving your goals. Instead of punishing yourself and feeding that mean little monster on your shoulder, give yourself a break.
You do not have to be perfect to be happy. We know this, but truly accepting this into your mind and heart is a process. I want to encourage you to imagine what happiness would look like, today, despite anything you perceive as flawed. Imagine that you are whole and content with all the baggage, the hurt and the broken pieces. Finally, lean into this fundamental truth:: You are imperfect and still worthy of healing and a good life.

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