Deans' stroke musings: Comparing participation outcome over time across international stroke cohorts: Outcomes and methods

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, January 25, 2020

Comparing participation outcome over time across international stroke cohorts: Outcomes and methods

What the fuck was the point of this research? Absolutely nothing here will get any survivor one iota closer to recovery. I would ban the mentors and senior researchers on this from any further stroke research for wasting time and money.

Comparing participation outcome over time across international stroke cohorts: Outcomes and methods

Archives of Physical Medicine and Rehabilitation , Volume 100(11) , Pgs. 2096-2105.

NARIC Accession Number: J82547. What's this?
ISSN: 0003-9993.
Author(s): Verberne, Daan; Tse, Tamara; Matyas, Thomas; Baum, Carolyn; Post, Marcel; Carey, Leeanne; van Heugten, Caroline.
Publication Year: 2019.
Number of Pages: 10.

Abstract:

Study compared participation levels in the first year after stroke, assessed by different outcome measures internationally. Data were obtained from two prospective stroke cohort studies following persons from stroke onset to 12 months post stroke: Australia’s STroke imAging pRevention and Treatment-Prediction and Prevention to Achieve optimal Recovery Endpoints (START-PrePARE) and the Netherlands’ Restore4stroke. Outcome measures were the Activity Card Sort-Australia and the Utrecht Scale for Evaluation of Rehabilitation-Participation. Activity domains were matched across measures to find common denominators and original scoring methods were recoded, hereby enabling a direct comparison of retained activities. Ninety-one START-PrePARE and 218 Restore4stroke participants with stroke were included for analyses. No major differences in background characteristics were observed between the cohorts; the Dutch cohort suffered from slightly more severe stroke. A higher level of participation was observed (radar charts) in the first months post-stroke for the Australian cohort than in the Dutch cohort, especially for unpaid work. At 12 months post-stroke, participation levels were similar, without significant differences in retained activities using the defined common denominators. High levels of participation were observed in both cohorts. Unpaid work showed different frequencies at 2-3 months, contributing to different trajectories over time across cultures. Important insights were gained. Although valuable information is inevitably lost with recoding, the approach may assist future studies on the harmonization of data across cohorts, particularly for 1 of the key outcomes of stroke: participation.
Descriptor Terms: COMMUNITY LIVING, INTERNATIONAL REHABILITATION, INTERPERSONAL RELATIONS, OUTCOMES, SOCIAL SKILLS, STROKE.

Can this document be ordered through NARIC's document delivery service*?: Y.

Citation: Verberne, Daan, Tse, Tamara, Matyas, Thomas, Baum, Carolyn, Post, Marcel, Carey, Leeanne, van Heugten, Caroline. (2019). Comparing participation outcome over time across international stroke cohorts: Outcomes and methods. Archives of Physical Medicine and Rehabilitation , 100(11), Pgs. 2096-2105. Retrieved 1/25/2020, from REHABDATA database.