But it is obvious that stroke survivors know nothing that could help stroke research. Survivors are not asked to present at any stroke conference.
I'm even less than a laboratory rat as Amy Farber puts it, not a single stroke person has ever contacted me. This just proves once again what Amy Farber has to say. For the past five years Farber has been battling not only her own disease but also the wall of resistance erected by those who believe that a patient can make about as much of a meaningful contribution to the process of scientific discovery as a laboratory rat.
Involving stroke survivors in research relating to life after stroke: methods and impact of involvement
Glasgow Caledonian University School of Health and Life Sciences
About the Project
Reference: SHLS20063
This PhD project will co-produce, implement and evaluate a model for engagement of stroke survivors in research relating to life after stroke.
It is now widely accepted(Really! Where the hell did you get that idea?) that the active involvement of people with a healthcare condition, their families, friends and carers, is beneficial to the quality, relevance and impact of health research. Accordingly, many funding bodies now mandate that researchers actively involve patients and the public in their research. However, there is a lack of consensus about best ways to involve people, and how to capture the impact of involvement. Involvement of people in research is a rapidly evolving area, with active developments in fields such as research co-production and citizen science.
Stroke is the most common cause of severe disability in the world. Research relating to stroke is a priority, and consequently involving stroke survivors in research is important. However, people with stroke often have a wide range of impairments and disabilities, including aphasia, visual impairment, cognitive and mobility problems, which can create barriers to participation. There are therefore many challenges to ensuring effective involvement of stroke survivors in research relating to life after stroke, and questions about the best ways to do this.
This PhD aims to:
1) Explore:
- the ways in which stroke survivors have been involved in research relating to life after stroke, and the reporting and impact of this
- stroke survivors’ experiences of involvement in research, including barriers and facilitators
- models of involvement in research, including PPI, co-production and citizen science
- stroke survivors’ views on different models of involvement
2) Co-produce, implement and evaluate key aspects of a strategy for engagement of stroke survivors in research
Candidates are requested to submit a more detailed proposal (of a maximum of 2000 words) on the project area as part of the application.
How to Apply
This project is available as a 3 years full-time or 6 years part-time PhD study programme with expected start date of 1 October 2021
Candidates are encouraged to contact the research supervisors for the project before applying.
For full-time study of this project, apply here
For part-time study of this project, apply here
Applicants shortlisted for the PhD project will be contacted for an interview within four weeks from the closing date.
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