Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Tuesday, March 12, 2013

What I am going to insist I get after my next stroke

This is totally not to be followed. Your doctors advice needs to be followed even though they are doing nothing to stop the neuronal cascade of death. Assisting by inaction in the death of your neurons. None of these have any human clinical trial proof so  don't expect an easy time getting your doctor to listen to you.  I want the kitchen sink thrown at saving my neurons.
Your doctor better have something similar planned and you need to demand the protocol now.  Winging it is not appropriate medical practice.
Better yet, Ask your doctor what they would do in the first week to save neurons for their stroke, if they don't have anything to say, get rid of them as a doctor.

I'm going to have to get a medic alert bracelet with this URL engraved.

0. Ambulance ride - hypothermia applied
  Have them stop at that frozen lake and dunk you in it.
http://oc1dean.blogspot.com/2013/02/study-of-brain-cooling-and-clot-busting.html
0.1  blood pressure cuffs in the ambulance ride
http://oc1dean.blogspot.com/2012/12/can-blood-pressure-cuffs-work-novel.html
1. Statins.
tested in rats from 2003
http://oc1dean.blogspot.com/2011/09/statins-induce-angiogenesis.html 
http://oc1dean.blogspot.com/2013/02/simvastatin-attenuates-stroke-induced.html
Or,
http://oc1dean.blogspot.com/2012/10/simvastatin-attenuates-axonal-injury.html
tested in humans, March, 2011
http://www.medwirenews.com/39/91658/Stroke/Acute_statin_therapy_improves_survival_after_ischemic_stroke.html
2. Fish oil.
     either by injection
http://oc1dean.blogspot.com/2013/03/fish-oil-may-help-stroke-patients.html
     or a feeding tube
http://oc1dean.blogspot.com/2012/10/fish-oil-for-brain-injuries-tbi.html
3.  Leg compressions
http://oc1dean.blogspot.com/2012/08/leg-compressions-may-enhance-stroke.html
4. anti-depressants -  real ones
http://oc1dean.blogspot.com/2012/12/scottish-news-stroke-study-into.html
5. music listening
http://oc1dean.blogspot.com/2011/03/music-listening-and-stroke-rehab.html
6. Sensation overload
   the human equivalent of rat whisker stimulation.
http://oc1dean.blogspot.com/2012/05/mild-sensory-stimulation-completely.html
7. Coffee - I want many cups a day

Coffee may help perk up your blood vessels


    reduce my dementia chances
delay my Alzheimers chances
reduce my Parkinsons risk
8. CerAxon
http://oc1dean.blogspot.com/2011/10/introducing-ceraxon-first-only-oral.html
Bobs use of it from Pink House on the Corner.
http://pinkhouseonthecorner.blogspot.com/2012/04/ceraxon-verdict-is-in.html

9.  Peptide application
http://oc1dean.blogspot.com/2013/03/tarix-pharmaceuticals-peptide.html
10. Action observation
 Videos of everything from walking, running, jumping to finger ballet, baseball throwing, piano playing, eating. Every minute of the day not spent in traditional rehab should be watching videos, including during meals, that would work on multitasking.
a.  http://oc1dean.blogspot.com/2012/05/clinical-relevance-of-action.html
b.  http://oc1dean.blogspot.com/2012/04/action-observation-and-mirror-neuron.html
c.  http://oc1dean.blogspot.com/2011/05/impressionable-brain-and-mirror-neurons.html
d.  http://oc1dean.blogspot.com/2012/05/action-observation-of-walkingrunning.html

11.  bFGF administered intravenously
http://oc1dean.blogspot.com/2013/03/potential-usefulness-of-basic.html
12. Viagra - Ladies, I don't know how you're going to convince your doctor why you need this, maybe say its for your spouse and you want to make sure your lady parts are still working. Only tested in rats.
http://oc1dean.blogspot.com/2011/03/viagara-and-stroke-rehab.html
13.  Training in lucid dreaming.
http://oc1dean.blogspot.com/2012/07/scientists-measure-dream-content-for.html
14.  Eptifibatide
http://oc1dean.blogspot.com/2013/02/study-of-combination-therapy-of-rt-pa.html
15.  dietary olive leaf extract
http://oc1dean.blogspot.com/2013/01/effect-of-dietary-olive-leaf-extract-on.html
16. ebselen - neuroprotective treatment? within 48 hours
http://oc1dean.blogspot.com/2012/12/ebselen.html
17.  diabetes drug linagliptin
http://oc1dean.blogspot.com/2012/12/diabetes-drug-may-reduce-brain-damage.html
18. Etazolate, an α-secretase activator
http://oc1dean.blogspot.com/2012/11/etazolate-secretase-activator-reduces.html
19.  Glibenclamide - administered intravenously 6, 12, and 24hours after reperfusion
http://oc1dean.blogspot.com/2012/11/glibenclamide-enhances-neurogenesis-and.html
20.   Paeoniflorin (PF) - PF treatment for 14 days
http://oc1dean.blogspot.com/2012/11/paeoniflorin-protects-against-ischemia.html
21.  administration of nontoxic carbon particles 
http://oc1dean.blogspot.com/2012/10/halting-brain-injury.html
22.  Ibuprofen
http://oc1dean.blogspot.com/2012/10/common-medicine-helps-repair-brain.html
23.  Ceria nanoparticles
http://oc1dean.blogspot.com/2012/09/ceria-nanoparticles-could-lessen-damage.html
24.  Head-of-Bed Optimization of Elevation
http://oc1dean.blogspot.com/2012/05/hoboe-head-of-bed-optimization-of.html
25.   antibiotic minocycline
http://oc1dean.blogspot.com/2012/05/antibiotic-may-be-new-stroke-treatment.html
26.   neurotransmitter precursor levodopa
http://oc1dean.blogspot.com/2012/05/early-promise-for-stroke-patients-given.html
27.   Inhalation of nitric oxide
http://oc1dean.blogspot.com/2012/03/inhalation-of-nitric-oxide-could-help.html
28.  old flu drug amantadine
http://oc1dean.blogspot.com/2012/02/study-old-flu-drug-speeds-brain-injury.html
29.  Melatonin 
http://oc1dean.blogspot.com/2012/02/melatonin-ameliorates-neural-function.html
and
http://oc1dean.blogspot.com/2013/12/melatonin-improves-neuroplasticity-by.html
30.   opiate antagonists — Effects of exogenous antagonists and dynorphin 1–13  - damn this war on drugs
http://oc1dean.blogspot.com/2012/01/treatment-of-stroke-with-opiate.html


I don't give a damn if this is considered practicing medicine, anything else is criminally negligent.
I challenge anyone at the Joint Commission/WSO to come up with something better. Anyone willing to take up that challenge? I will post an unedited reply.

2 comments:

  1. Dean I'm going to Peter's seminar today.......

    ReplyDelete
  2. I relish this post, Dean! You are a scrappy, honest, bitterly witty, occasionally all-out funny, intelligent as with a moving knife, stroke-wise yet humble, and helpful to all stroke survivors or anyone interested in their well being. Recommendtion: perhaps sadly, often gleefully and regularly read his posts (all the more if you're a neurologist). Weep and counterintuitively enjoy! ~from a survivor of a massive hemorrhagic stroke...

    ReplyDelete