Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, July 19, 2016

NEJM: “TBI’s long-term follow-up - slow progress in science and recovery”

We should have similar articles written on long-term followup in stroke. That is what a great stroke association would be doing to see what works and what didn't so stroke protocols could be updated. But NO, we have fucking failures of stroke associations doing nothing for stroke survivors that is of any use to recovery, in my opinion.
http://www.mdlinx.com/neurology/top-medical-news/article/2016/07/18/8

Georgetown University Medical Center News
Eleven years ago in the New England Journal of Medicine, medical journalist Susan Okie, MD, first introduced readers to two U.S. Army veterans who suffered traumatic brain injuries in Iraq, and the challenges they faced in the recovery period after returning home. In the July 14 issue of the NEJM, Okie describes her follow–up interviews with the soldiers, and the slow journey to recovery that continues more than a decade later. “Visiting with [Jason] Pepper and [David] Emme....I’ve observed ample evidence of healing, not just in how they sound and what they’re able to do, but in how they seem to experience feelings and dreams,” Okie writes in the NEJM Medicine and Society article, “TBI’s Long–Term Follow–up – Slow Progress in Science and Recovery.” Okie details the personal journeys of each man through years when they did and didn’t have medical care. She explores how each encountered symptoms so often associated with TBI and PTSD: sleeplessness and nightmares, irritability, depression, guilt and anxiety. Each man’s recovery is “slow” – Pepper only received a comprehensive TBI evaluation at a VA hospital this year – but both continue to make progress, Okie says, and she attributes both men’s resilience to a common factor. “Although surgical and medical treatment were crucial to Emme and Pepper initially, close personal relationships have sustained them over the past decade,” she writes. Okie observed that Emme survived a critical setback likely because a long–standing friend reached out to him just in time. And she says for Pepper, it appears that his marriage and devotion to family “helped him survive periods of grief for what he’d lost.”


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