Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, September 25, 2017

Canadian Stroke Best Practice Recommendations Call for Writing Group Members

If you are Canadian ask them why they aren't writing 'Stroke Best Practice Results'. Survivors want RESULTS not lazy guidelines or recommendations or 'care'. PROTOCOLS, PROTOCOLS, PROTOCOLS.
Efficacy is needed, I expect % success for each protocol.  I suggest joining the writing group as a stroke survivor so they stay focused on getting survivors 100% recovered rather that the current 10% full recovery. You can't let stroke professionals write these, they will dumb down the necessary things needed to get to 100% recovery and won't even set 100% recovery as the goal for all stroke survivors.
http://mailchi.mp/d0fe799fb22a/cpsr-stroke-recovery-news-e-newsletter
An invitation to participate in the development of stroke best practice recommendations from our partners at Heart & Stroke
The Canadian Stroke Best Practice Recommendations (CSBPR) are considered among the strongest and most rigorous stroke guidelines available globally.  We have made remarkable progress in improving stroke care (What about results?) and educating healthcare professionals in evidence-based stroke care delivery over the past several years. 

We are now into our  6th Edition of the CSBPR and starting our review and update of the Rehabilitation moduleThis year, the writing group is being co-chaired by Dr. Robert Teasell  (London), and Dr. Nancy Salbach (Toronto).  Under their excellent leadership we will undergo the update process from October 2017- June 2018.

We are seeking experts in issues relating to rehabilitation following stroke to volunteer as part of this writing group.  You may nominate yourself or a colleague.  We work within a multidisciplinary cross-continuum model and welcome nominations from all healthcare disciplines that work with patients who have experiences a stroke and their families within all relevant setting (inpatient, ambulatory, community).

All names to be submitted to Elisabeth Smitko (elisabeth.smitko@heartandstroke.ca) no later than September 30, 2017.

(Kindly note that the size of the writing group is limited, therefore if you volunteer for this group and all the spots get filled, we will keep your name on file and you will be considered as a potential external reviewer later in the process, or for other modules when they begin).

Your involvement would include:

  • Completion of the HSF Confidentiality and Conflict of Interest form prior to start of review process;
  • Review evidence summary tables (evidence extractions provided to you already completed)prior to phone calls and identify other potentially relevant evidence to be included;
  • Participate in writing group phone calls about every two to three weeks from end of October 2017 to June 2018 (some alterations may be made for holidays). During these calls all existing recommendations will be reviewed for continued relevance and assigned levels of evidence, evaluate new and emerging evidence, and discuss required additions, deletions or changes to the recommendations (note this is the most intense participation period);
  • Review final draft recommendations and provide input;
  • Participate in discussions and development of implementation materials as needed;
  • Promote best practices with your professional colleagues.
  • Be listed as a co-author on any publications of the guidelines; and as well participate in presentations where interested. 
  • Participation on writing groups can be counted as part of your annual CME requirements for your professional college licensing and certificates of participation are provided to all members and reviewers
  • Letters of participation and acknowledgement of your efforts sent to university and hospital department heads upon request.
 

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