Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there. Did your doctor somehow miss the recovery protocol that Pedro Bach-y-Rita used to recover fully back in 1958 with only a partial brain?

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label Tiny Buddha. Show all posts
Showing posts with label Tiny Buddha. Show all posts

Tuesday, September 4, 2018

How Failure Holds the Key to a Meaningful, Successful Life

You need to read and take this Tiny Buddha post to heart. In your stroke recovery you are going to fail millions of times. I have failed in getting my walking correct 4,594,974 steps in the past 4 years, yet I persist. I'm sure I will never walk correctly again because my spasticity will never be cured. I blame that lack of spasticity cure directly at Dr. William M. Landaus' feet because of this totally misguided crapola of his.


Spasticity After Stroke: Why Bother? Aug. 2004 

Good stroke leadership from survivors and a strategy could have gotten around  his blockade. Comeuppance would be too good for him.  

The latest here:

How Failure Holds the Key to a Meaningful, Successful Life

How Failure Holds the Key to a Meaningful, Successful Life


“Perfectionism doesn’t believe in practice shots.” ~Julia Cameron
Within each of us lurks a perfectionist. And perfectionists set themselves up for a lot of pain in life.
How so? I’ll come to that.
First let me describe how our first child took her first step. She was less than ten months old. A very bright girl, who wanted nothing less than my approval at all times.
On one occasion, a few months previous to that, she was crawling on the carpet and picked up some small thing. As she started to put it in her mouth, I called out loudly “No!”
That was the first time she experienced any negative or critical words from me. Otherwise, I had been steadily adoring. What was her response?
She fell flat on the floor and remained perfectly still. It was as if she had been laid flat by a sledgehammer blow.
That’s how much she had come to rely on my approval.
So, what happened when one day she could finally stand up? I decided, as a very proud parent, to teach her how to walk right away.
Now, walking is easy for someone who’s already confident with standing up. It’s more challenging for someone who’s just learned how to stay on their feet unsupported. I was too young and foolish and overeager to think through all that.
In my excitement, I stood by her and urged, “You can walk. Just do this. Look at me. Just lift a foot like this and put it forward.”
In retrospect, I was too hasty and cruel. I’ve grown to recognize that everything happens in its own good time.
Anyhow, I was young and foolish then. So, allow me to tell you the rest of the story.
Our baby looked very doubtful. I demonstrated a step once again. She remained hesitant.
After some more cajoling from me, she decided to do something.
She took the oddest first step you can imagine.
Did she lift one foot as I kept urging? No.
She simply hopped forward, keeping both feet on the ground. Like a baby kangaroo. That was only minutes after she had first stood up without support.
Of course, not long after that she was walking very confidently, and then running, and has gone on to do amazing things with her life.
Imagine if we were all so afraid of failure that we always kept both feet on the ground for safety. How much would that interfere with a full and meaningful life? How would that affect our ability to do whatever we considered to be good and important?
We can see this quite clearly in babies. In order to be able to lift their head, they need to accept that they’ll sometimes flop.
In order to learn how to crawl, they need to accept that they’ll sometimes fall flat on their face.
In order to learn how to stand, they need to accept that they’ll sometimes fall in a heap.
In order to learn how to walk, they need to accept that they’ll sometimes tumble.
In order to learn how to cycle, they need to accept that they’ll sometimes fall off and get bruised.
In order to learn how to swim, they need to accept that they’ll sometimes need rescuing.
In order to learn how to read and write, they need to accept that they’ll get many things hilariously wrong.
In order to learn to love wholeheartedly, they need to accept that some people will betray their trust.
Whenever they want to do something that’s good and important in their lives, they need to accept the possibility of failure.
It’s easy to acknowledge such facts, but it’s more difficult to live by them.
Why is it that we often struggle with failure? Why do we so often consider it as a full stop rather than a necessary comma in our life story? Why does it seem more like a trap than a springboard?
It may have something to do with our need for approval.
Our daughter didn’t want to hear the word “No!” from her beloved parent. It crushed her the first time she encountered it from me.
Only after I picked her up and comforted her did she loosen up and smile again. She was learning that she could get things wrong and still remain completely lovable to me.
People can be good to us. They can build us up. They can teach us that it’s okay to fall and fail, because we’ll still be completely lovable.
However, we’re all human beings. We don’t always do what we set out to do. We don’t stick to doing what we know to be good and important.
As a result, we often wound others and are too often wounded by them.
That tends to suck us into the rat race. Not content with being intrinsically and unshakably lovable, we tend to look for reassurance. And too often we seek it by trying to be one up on others.
We sometimes pounce on the mistakes or flaws of others because it allows us to feel superior despite our own mistakes or shortcomings. We sometimes become overly reliant on praise because we’re terrified that criticism confirms how worthless we are under the surface. 
All this tends to make life a bit like walking on thin ice. Even when it looks as if we’re winning, we’re on edge because we fear that the ice might give way at any moment. I know, because I've struggled with these things myself.
Imagine a different way of living. A calm and courageous way of reaching for whatever we consider to be good and important in our lives, with full acceptance of whatever failures come our way.
Paradoxically, the perfectionist is more likely to fail because they’re too afraid to bring out the best in themselves. They’re so hungry for approval, and so afraid of failure, that they often don’t do what they know to be good and important.
They keep the safety wheels on their bicycles even though it slows them down. That’s because they’re convinced that failure will confirm their worthlessness.
Imagine a different way. Imagine having a deep, unshakable anchor within yourself. An anchor of self-acceptance. No storms in life can then blow you out of the safe harbor of being intrinsically lovable.
The baby who’s uncertain of being lovable might be too afraid to attempt anything worthwhile. It’s the same with us adults.
Our perfectionism goes hand in hand with fear of failure. It’s like a prison. However, we have the key, or we can find it.
This may be the most important lesson life has taught me, and I’m going to share it.
You can get the key to calm, courageous living by letting others know that they are unshakably lovable despite their failures and mistakes and flaws.
When you give this gift to others, you begin to believe it yourself. Not as a sterile principle. But as a reality that you feel deep in your being.
Once you have this key, perfectionism loses its stranglehold over you. You recognize that you are intrinsically worthy and lovable, just like every other human being.
Life becomes really good and inviting, failure can no longer terrorize, and you get more good and important things done.
Once you’re prepared to fall flat on your face, life starts to sparkle.

Monday, May 23, 2016

How to Deal with Depression and Anxiety: 10 Lessons from a Lake

Your doctor should be giving you tons of stroke protocols on how to deal with this, but if you get nothing this might help. I received nothing from my doctor.
A great Tiny Buddha post, full article at link.
http://tinybuddha.com/blog/deal-depression-anxiety-10-lessons-lake/
Here’s what I learned from the lake about overcoming depression and anxiety.

1. Acknowledge your emotional pain.

2. Practice distraction.

3. Accept what can’t be changed.

4. Become less self-critical.

5. Hold on to hope.

6. Become skilled at self-parenting your inner child.

7. Reduce big problems to small solutions.

8. Change what can be changed.

9. Boost your physical well-being.

10. Cultivate “flow.”

Wednesday, January 27, 2016

How to Be Your Own Hero When Faced With a Hopeless Challenge - stroke recovery

You are going to have to figure out your stroke recovery on your own. Your doctors and therapists basically know nothing as evidenced by no published stroke protocols on recovery. They would rather tell you the fuckingly stupid statement of: 'All strokes are different, all stroke recoveries are different'.

How to Be Your Own Hero When Faced With a Hopeless Challenge - Tiny Buddha

1. Act like a sea star, not a wounded bird.

2. Remember: the world is your oyster.

3. Dive deep into the research.

4. Avoid becoming overwhelmed.

5. Learn from your mistakes. (We all make them!)

6. Don’t be afraid to ask for help.

7. Make gratitude a daily habit.

Tuesday, July 14, 2015

5 Limiting Beliefs That Sabotage Your Dreams

Another great post on Tiny Buddha. Details at the link. 

5 Limiting Beliefs That Sabotage Your Dreams


The following are five limiting beliefs that sabotage your dreams.

Belief 1: It’s too difficult.

Belief 2: I have to become successful quickly.

Belief 3: Either I’m famous or I’m a failure.

Belief 4: It’s too late for me.

Belief 5: It’s too risky. I might fail.


Friday, March 20, 2015

Which wolf are you feeding in your post-stroke life?

Once upon a time, a Native American elder was telling his grandson a story of two wolves that live in each one of us and wage a daily struggle for dominance in our lives.
One wolf is filled with love, joy, hope, peace, gratitude, optimism, generosity, understanding, humility, kindness, truth, faith, and compassion. The other is a reflection of bitterness, envy, anger, sorrow, guilt, greed, arrogance, self-pity, inferiority, lies, ego, selfishness, and judgment.
Their struggle is constant, their determination to win unwavering.
“So, which wolf wins?” asked the grandson.
The grandfather responded, “The one you feed.”
We all have a choice to accept our own goodness and nurture it every day. We can all embrace the best within us and choose happiness over sadness. Which wolf will you feed today?
A commentary on this in Tiny Buddha;
10 Steps to Access Your Goodness and Change Your Life

Wednesday, November 19, 2014

7 Habits of Chronically Unhappy People

Is your psychologist from the hospital discussing stroke protocols with you to discover happiness?
I use Tiny Buddha. But never follow anything I do. 

7 Habits of Chronically Unhappy People
Here are the 7 qualities of chronically unhappy people.
1. Your default belief is that life is hard.
2. You believe most people can't be trusted.
3. You concentrate on what's wrong in this world versus what's right.

4. You compare yourself to others and harbor jealousy.

5. You strive to control your life.

6. You consider your future with worry and fear.

7. You fill your conversations with gossip and complaints.

Details at link.

Tuesday, September 9, 2014

How to Use Your Anger to Help Yourself

This line is probably the most useful to us as stroke survivors. And your doctor is probably the most critical person to be angry at; for not doing anything during the critical first week when your neurons are dying by the truckloads.

Anger can help you raise your energy level and move out of depression and despair.

A Tiny Buddha post;
http://tinybuddha.com/blog/how-to-use-your-anger-to-help-yourself/
I used anger to propel myself into writing this blog, 6200 posts later and the anger is just as strong.

Tuesday, March 18, 2014

Gratitude: Stroke rehabilitation

What your mental health therapist from the hospital should be working on for you. I had no mental health support for years until I figured it out myself. What an incredible waste of time and effort. All survivors need this.
I point a lot to Tiny Buddha and Seth Godin. Both give me lots to think about and contemplate in my life.
Gratitude: A Powerful Fat Loss Tool

Want to be happy? Be grateful - TED talk

Practicing Gratitude is Key to Daily Happiness

3 Keys to Being Happy, No Matter What Happens 

From a Tiny Buddha post

1. Gratitude


2. Self-Compassion


3. Passion

 

Monday, March 17, 2014

“When something bad happens you have three choices. You can let it define you, let it destroy you, or you can let it strengthen you.” ~Unknown

I refuse to let this damned stroke destroy me.
A great writeup from Tiny Buddha;
http://tinybuddha.com/blog/how-pain-from-the-past-can-be-a-gift-in-the-present/
I think it goes with this picture.
"Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a Ride!"

and that's by Hunter S. Thompson
but his last words  prior to his suicide at age 67 don't quite show that resolve.
"No More Games. No More Bombs. No More Walking. No More Fun. No More Swimming. 67. That is 17 years past 50. 17 more than I needed or wanted. Boring. I am always bitchy. No Fun - for anybody. 67. You are getting Greedy. Act your old age. Relax - This won't hurt."
http://img0.etsystatic.com/017/0/6901096/il_570xN.477439472_coul.jpg

Friday, February 7, 2014

Envy in stroke recovery

This probably befalls every one of us. How come she recovered her hand when I've done just as much work?
A Tiny Buddha post puts it into perspective,

How Overcome Envy So It Doesn’t Poison Your Relationships

 1. Stop comparing yourself to others.

2. Stop judging.

3. Start seeing things clearly.

Full details at the link, its worth a read.

Tuesday, December 31, 2013

“Better to do something imperfectly than to do nothing flawlessly.”

Robert H. Schuller

I got this from the latest Tiny Buddha post. Exactly what Peter Levine says about your movements in rehab. 

And more great quotes from there;

“What have you done to make your dream come true?”


I was scared that I wouldn’t be good enough, posh enough, young enough, confident enough, and Lord-knows-what-else enough to learn how to play a musical instrument. 


I hate the way my walking looks, my hip hikes, my foot swings out, my knee barely bends. The only thing that mostly recovered is I can dorsiflex the foot by thinking about it. But I'll walk every weekend in the trails in the woods, falling down doesn't occur too much anymore.  And my skiing is atrocious, it would be even worse if I had to step over all the fallen limbs and trees I cleared in the past 4 months. Right now I'd call it shuffling on skis, there is no glide yet.

Too many of my email correspondents want the instant rehab - if only I can find the right therapy/therapist.


I think the best advice our doctors and therapists could give us would be; There are NO shortcuts to stroke rehab, its going to look ugly for a long time. We have no idea how much you'll recover. Are YOU willing to put in the time and effort to recover?

 

Friday, December 27, 2013

Perfection vs. resiliency

I'm a firm believer in failure as a great way to have stories to tell for the rest of your life.
http://tinybuddha.com/blog/why-screwing-things-up-is-crucial-to-your-well-being/
A couple of great paragraphs from Tiny Buddha. But read all of it.
A 2008 Psychology Today article titled “Pitfalls of Perfectionism” states, “[T]he biggest problem with perfection may be that it masks the real secret of success in life. Success hinges less on getting everything right than on how you handle getting things wrong.”
That’s why it’s so important for us all to mess up once in a while. We must re-learn what we knew as children—that screwing up is not the end of the world. That we can recover, and keep trying, and get better.
We must learn failure resiliency. We need to know deeply, not just mentally, that we can always bounce back.
And this Tiny Buddha is a great antidote to the therapist pushed perfectionism that Peter Levine writes about.
Movement elitism

Your doctor better have protocols for creating your relilience.
Understanding stress resilience

Like this William Nealy cartoon. This one is copied from  The Nealy Way of Knowledge.;