Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, May 8, 2025

A global lens on stroke care

 

This is the whole problem in stroke enumerated in one word; 'care'; NOT RECOVERY!

YOU have to get involved and change this failure mindset of 'care' to 100% RECOVERY! Survivors want RECOVERY, NOT 'CARE'!

I see nothing here that states going for 100% recovery! You need to create EXACT PROTOCOLS FOR THAT!

ASK SURVIVORS WHAT THEY WANT, THEY'LL NEVER RESPOND 'CARE'! This tyranny of low expectations has to be completely rooted out of any stroke conversation! I wouldn't go there because of such incompetency as not having 100% recovery protocols!

RECOVERY IS THE ONLY GOAL IN STROKE! GET THERE!

A global lens on stroke care

Mark Delabajan 6 May 2025

This blog shares my journey from rural Philippines to being a Stroke Nurse Consultant in the UK, reflecting on global stroke care(NOT RECOVERY!) disparities. As we mark Stroke Awareness Month, I hope to inspire nurses to act fast, raise awareness, and advocate for equitable care(NOT RECOVERY!).

May is Stroke Awareness Month—a time when clinicians across the globe unite to raise awareness about stroke’s devastating and unpredictable nature. As a Stroke Nurse Consultant, I’ve seen how it strikes without warning and instantly changes lives.

Over the past 12 years, I’ve cared for stroke patients of all ages—young professionals, new parents, even teenagers. It’s now a cliché to call stroke a disease of the elderly. That perception is outdated. Despite advances, awareness and timely response are still lacking—and that delay can cost lives.

From a remote island to the NHS frontline

I was born and raised on an island in the Philippines—beautiful, but far removed from medical infrastructure. Fifteen years ago, when I left, stroke was often a death sentence. CT scans were scarce and located in cities far from rural communities. Many patients endured long journeys just to get diagnosed—often too late, as the brain damage had already occurred.

Stroke rehabilitation was practically non-existent. Physiotherapy and occupational therapy were expensive and accessible only in urban areas. I had never seen a speech and language therapist perform a swallow assessment before moving to the UK. It wasn’t about neglect—we simply didn’t have the resources. When I joined the NHS, my understanding of stroke care(NOT RECOVERY!) transformed.

Learning the urgency of stroke care(NOT RECOVERY!)

Here, I discovered time-critical treatments like thrombolysis and thrombectomy. I learned how vital it is to act fast—to reverse anticoagulation, rapidly lower blood pressure in haemorrhagic stroke, and expedite brain imaging. Stroke management is truly a race against time.

I was naive at first, but I committed to learning—doubling, even tripling my study. Over time, stroke medicine became my passion. Today, I manage acute stroke patients at the front door and support their recovery through follow-up care(NOT RECOVERY!). I also represent the RCN Neuroscience Forum in the Intercollegiate Stroke Working Party, helping shape national stroke policy.

The reality of inequity—Even here

Despite the UK’s robust stroke care(NOT RECOVERY!) system, challenges remain. Thrombectomy access is still inconsistent across regions, and CYP2C19 genotyping—potentially key for guiding antiplatelet therapy—isn’t widely available. Every time I see someone miss out on treatment they might have benefitted from, it highlights the need for continued advocacy.

I also think often of my hometown—and similar places around the world—where life-saving interventions are out of reach altogether.

Nurses: educators, advocates, lifesavers

We can’t eliminate global health disparities overnight. But as nurses, we are powerful educators and advocates. Teaching the public how to recognise stroke symptoms and act fast is one of the most impactful things we can do.

The FAST acronym—Face, Arms, Speech, Time—remains one of our strongest tools. Recognising signs and acting quickly reduces disability, saves lives, and gives patients a fighting chance.

I urge my fellow nurses: during Stroke Awareness Month, talk about stroke in your clinics, wards, communities, and online. Because when we share knowledge, we empower action.

Final thoughts

It pains me to say that in the community I grew up in, people often didn’t stand a chance after a stroke. But here in my current role, I see what’s possible when timely care(NOT RECOVERY!) is available. I feel fortunate to work at the frontline of stroke care(NOT RECOVERY!)—and a deep responsibility to improve it further.

Let this month be more than a campaign. Let it be a call to act—educate, advocate, and drive change so that patients everywhere, regardless of where they live, get the care(NOT RECOVERY!) they deserve.

1 comment:

  1. Thank you Dean. Still reading your contributions with their brilliant insights 5 years after having my Stroke. Your POV's still get my heart pounding. Thank You Sir
    Tim Smith Oakland, CA

    ReplyDelete