Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, July 28, 2025

The yin and yang of safety and risk: a content analysis and critical narrative synthesis exploring the conceptualisation of risk in the stroke rehabilitation literature

My risk taking started my first day release from the hospital; went to watch a whitewater slalom race with a quarter mile rough path to get to the banks. Nurses found out about it and I got a stern visit from one of my doctors highly recommending against it. I totally ignored her since she obviously knew nothing about my risk taking. I was damn good at OC1 and OC2 slaloms and wasn't going to miss it.

The trophies are from the Buttercup series of whitewater slalom races(6 races in Wisconsin and Minnesota).

Left is 1rst place OC1(Open Canoe 1 person) 2004

Middle is 2nd place OC1(Open Canoe 1 person) 2003

Right is 3rd place OC1(Open Canoe 1 person) 2005, stroke was in May 2006

Missing are the two first place finishes in OC2(Open Canoe 2 person) in consecutive years with different paddling partners, they have the trophies.











One of my main reasons for my excellent balance is this: Don't follow me, I'm not medically trained, is your doctor?

  • bar stool rehab (3 posts to January 2014)




  •  The yin and yang of safety and risk: a content analysis and critical narrative synthesis exploring the conceptualisation of risk in the stroke rehabilitation literature


    (open in a new window)

    Abstract

    Many people feel unprepared for life following discharge from stroke services. Rehabilitation occurs within a harm-reduction framework, but evidence suggests risk-taking is crucial for recovery. The aims of this review study were to explore how risk is conceptualised in the stroke rehabilitation literature and to develop a critical narrative synthesis of articles exploring and challenging dominant conceptualisations of risk, in the context of post-stroke identity and engagement in valued activities. We undertook a literature search (including Embase, PubMed, CINHAL and PsycINFO), including qualitative, quantitative and mixed-methods studies in post-stroke adults > 18 years. Phase 1 involved a content analysis, with 1420 articles screened and 246 included. Most (n = 233) were described by the theme ‘Safety first’, divided into sub-themes: i) Physical safety; ii) Societal and organisational protection; and iii) Cognitive, affective and communication risks. Remaining articles were described by Theme 2: ‘Taking risks as necessary and subjective’. Critical narrative synthesis in Phase 2 included fifteen articles, demonstrating the imposition of ‘rules’ for safety, despite risk-taking being important. The predominant narrative prioritised safety and harm-reduction during stroke rehabilitation, overlooking unintended consequences for post-stroke identity and engagement in valued activities. The voice of people post-stroke was largely absent(So, not listening to the experts in the field.) in decision-making around risk prioritisation and management, which often failed to acknowledge the inherent uncertainties and sociocultural factors influencing beliefs and behaviours in relation to risk. Further qualitative research is needed to understand the experiences of people post-stroke and to inform service co-design and shared decision-making in relation to risk in stroke rehabilitation.

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