Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, June 19, 2014

U of M joins national stroke research project

We as survivors need to get completely involved in StrokeNet because if this is left up to researchers and doctors they will completely fail in following a strategic plan just like they've been failing for the past 40 years.
http://bringmethenews.com/2014/06/18/u-of-m-joins-national-stroke-research-project/
The idea behind StrokeNet is to allow institutions to share the information and data they collect to speed up research and cut costs.
“The new system is intended to streamline stroke research, by centralizing approval and review, lessening time and costs of clinical trials, and assembling a comprehensive data sharing system,” says Dr. Petra Kaufmann, associate director for clinical research at the National Institute of Neurological Disorders and Stroke.
The NIH reports the 25 research centers are strategically placed in every region of the country, and were selected because of demonstrated experience in stroke research and recruitment, including the ability to enroll underrepresented populations.
The University of Minnesota was selected because of its reputation of academic excellence, dedication to research and advancement of medical knowledge, the U reports.

More at link.
I would suggest contacting  Dr. Petra Kaufmann at NINDS to get involved.
Petra.kaufman@nih.gov


Posted by at
Labels: , , , ,

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)