Deans' stroke musings: Virtual Lobby Days event by the National Stroke Association

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, June 27, 2014

Virtual Lobby Days event by the National Stroke Association

This email encompasses all what is wrong with our stroke associations;
No strategic plan, just a scattershot approach. The extremely simple answer is to create a National Stroke Plan like the National Plan to Address Alzheimer’s Disease
or H.R. 1098, the Traumatic Brain Injury Reauthorization (TBI) Act of 2013.
By creating a strategic plan all these activities lead to one result, lower death and disability due to stroke.
But no, we get this crap;
http://www.stroke.org/site/R?i=_BNRNDBD8z9SEdSeL7174g

Having trouble? View this message on our website.

Stroke Advocacy Network - Virtual Lobby Banner

Dear dean,

We wanted to remind you that the Virtual Lobby Days event ends today. If you haven’t already, please take the time now to contact your members of Congress about stroke-related legislation that is important to the stroke community. Join thousands of Stroke Advocacy Network members—people concerned about the impact of stroke, just like you—to ask Congress to:

Repeal the caps on Medicare outpatient therapy services;
Help stroke survivors return to work;
Ease the financial burden on caregivers;
Support funding for stroke-related medical research;
Expand access to specialized stroke care under the Medicare program; and
Learn more about stroke and become a stroke advocate on Capitol Hill.

As a member of the Stroke Advocacy Network, we know you’re one of the strongest advocates in the stroke community. Thank you for your efforts thus far, and for responding to this call to action before it’s too late!

Sincerely,

Advocacy Staff

We also follow legislative activities in your state capital. Visit our State Advocacy Action Center and find out what you can do for stroke in your state today! Want to know what’s happening across the country? Read our latest e-newsletter.