Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, May 14, 2015

Stroke - The way forward

Since I haven't seen any strategy or planning from any stroke association or person I figure I'm more qualified than most to provide a step by step plan for solving the f*cking problems in stroke. I was going to call this a manifesto but that would recall the Unabomber.
1. No fast, easy, accurate and objective way to diagnose a stroke, both ischemic and hemorrhagic. This is easy to solve; you fund researchers to test out these 17 possibilities to find out which one is the best. Or maybe the Qualcomm Xprize for the tricorder. No installing scanners in the ambulance, that is a waste of money.
The goal is to deliver tPA while still in the ambulance. None of this lazy door-to-needle time.
2. Replace tPA. It only completely works to clear the stroke 12% of the time. This has been known almost since the beginning  but no one was willing to identify the emperor as naked. As a result we've wasted 19 years trying to make the world believe tPA works. And lost 19 years of research time. What a FUCKING waste. Everyone associated with this failure should have their medical license removed.
3. Solve the neuronal cascade of death. I bet this is more important than replacing tPA. We know the 
5 causes of neuronal cascade of death We just need to fund researchers to solve them. Maybe a good start would be to talk to Dr. Michael Tymianski, of the Toronto Western Hospital Research Institute in Canada who talked about 1000+ failed neuroprotective drugs years ago. That talk could establish a basis for why those drugs failed and speed up the solutions needed.  Dr. Michael A. Moskowitz in 2010 had some great ideas needing followup;
The Science of Stroke: Mechanisms in Search of Treatments This is not rocket science, you state exactly the problem and fund researchers to solve that problem. Maybe a few billionaires might want to chip in a few bucks for their self preservation in case they have a stroke.
I will be asking my doctor to do  these 31 hyperacute possibilities I'm going to insist my doctor give me the first week after my next stroke. I don't give a shit if they haven't been clinically proven. I want the kitchen sink and all the mice and rats that gave their lives for stroke research to be thrown at my stroke.  These 177 hyperacute therapies that need more research.
4.  Get an accurate 3d damage diagnosis both dead brain and penumbra. Without this it will be impossible to correlate stroke protocols to recovery. And finally have physiatrists stop giving out stupid prescriptions like ET(Evaluate and treat).  I expect my doctor to know what protocols to prescribe to fix the damage that was just accurately diagnosed rather than throwing every bit of recovery responsibility onto the therapists.  A 3d MRI mapping of dead brain is possible, I had one from James R. Carey, PhD, PT, FAPTA at the University of Minnesota in a research program.  Penumbra damage can be evaluated via PET scans
5. Establish stroke protocols for everything in the first weeks. This requires that our stroke medical professionals have to become professional and drop this blastedly stupid idea that 'All strokes are different, all stroke recoveries are different'' This has been used as a crutch for too fucking long as to why stroke survivors can't be helped to recover.
   a. Diet protocols. Stroke prevention, dementia prevention and stroke recovery. There is plenty of research out there that this should be easy to compile. These are my ideas.

What would a post-stroke diet look like?

  b.  Music protocols. This is a complete no-brainer, your doctor is completely incompetent if this hasn't already been implemented in their hospital.

      1.  Exploring a Neuroplasticity Model of Music Therapy


      2.  Revealed: The Type of Music That Makes You Feel Most Powerful


       3. 11 Problems Music Can Solve


       4. How playing an instrument benefits your brain - Anita Collins


        5. Why does music therapy work? The Science Behind the Music.


        6. Musical Training Can Increase Blood Flow in Bra/in


        7.  Listening to classical music ameliorates unilateral neglect after stroke


         8. Music brings memories back to the brain injured 


         9.  Plasticity in the sensorimotor cortex induced by Music-supported therapy in stroke patients: a TMS study


          10.  Moderating variables of music training-induced neuroplasticity: a review and discussion


           11. Hand-Clapping Songs Improve Motor and Cognitive Skills, Research Shows


         12. Music listening enhances cognitive recovery and mood after middle cerebral artery stroke


         13. Intensive musical therapy may help improve speech in stroke patients 


The classical music one;


           Classical Music’s Surprising Effect on Genes Vital to Memory and Learning

c. Cognitive training protocols.  Survivors need as much brain power as they can muster to recover so give them some training in this. 

        1. Mind expanding: 7 ways to fine-tune your brain


         2. Improving fluid intelligence with training on working memory


         3. Gaming improves multitasking skills Study reveals plasticity in age-related cognitive decline.


         4. NUS study revealed that Vajrayana meditation techniques associated with Tibetan Buddhism can enhance brain performance


         5. Rehabilitation for post-stroke cognitive impairment: an overview of recommendations arising from systematic reviews of current evidence 


         6. Video Game Training Improves Cognitive Control in Older Adults


         7. The Art and Science of Cognitive Rehabilitation Therapy


         8. Towards a Smart Population: A Public Health Framework for Cognitive Enhancement


          9. Want to Slow Mental Decay? Play a Video Game

d. Meditation protocols.   This is a no-brainer also, Amy has proven this multiple times. The breathwork will generate NO, nitric oxide. Breathing exercises create nitric oxide which relaxes the arterial walls  lowering your blood pressure.
If your doctor doesn't know this, run run far away.

See Amys' posts here:


        Kundalini Yoga


        Why I Do What I Do Part Two…..Meditation


         Meditation and Breathwork


         Meditation and Chanting


         Yoga Breathing

e.  Action observation protocol gifs for every possible muscle movement.

The actual amount of therapy each day is appallingly low, this could be used to fill those empty hours.

           1.  New research supporting stroke rehabilitation   Nov. 2014.


            2.  Plasticity and Response to Action Observation   Oct. 2014.


             3.  Motor imagery during action observation modulates automatic imitation effects in rhythmical actions   Mar. 2014.


            4.  Clinical feasibility of action observation training for walking function of patients with post-stroke hemiparesis: a randomized controlled trial   Mar. 2014.


             5.  Training Videos Help Restore Motor Function, May Aid in Stroke Rehabilitation Mar. 2014.


             6.  Using action observation to study superior motor performance: a pilot fMRI study  Jan. 2014.


              7.  Multiple roles of motor imagery during action observation  Jan. 2014.


              8.  Motor imagery ability in stroke patients: the relationship between implicit and explicit motor imagery measures  Dec. 2013.


               9.  From action representation to action execution: exploring the links between cognitive and biomechanical levels of motor control  Oct. 2013.


               10.  Action observation as a stroke therapy  June 2013.

   

                11.  Action-Observation In Stroke Rehabilitation  June 2013.


                12.  Exercise for stroke patients' brains  June 2013.


                 13.  Watching object related movements modulates mirror-like activity in parietal brain regions  March 2013.


                 14.  Watching object related movements modulates mirror-like activity in parietal brain regions  May 2012.


                  15.  Action observation and mirror neuron network: a tool for motor stroke rehabilitation.  April 2012.


                   16.  Modulating the motor system by action observation: Implications for stroke rehabilitation  Feb. 2012.

 I challenge the following with their staffs to produce something better than this without referring to my blog.
Matt Lopez, president of the NSA
Dr. Mariell Jessup, president of the ASA
WSO President - Steve Davis (Australia)

A separate followup post will delineate where research needs to be done for some physical problems.

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