Deans' stroke musings: Measuring access to information and technology: Environmental factors affecting persons with neurologic disorders

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, October 17, 2016

Measuring access to information and technology: Environmental factors affecting persons with neurologic disorders

This is currently totally useless since there is no database of stroke protocols to provide information to stroke survivors.
http://search.naric.com/research/rehab/redesign_record.cfm?search=2&type=all&criteria=J74413&phrase=no&rec=131578&article_source=Rehab&international=0&international_language=&international_location=
Archives of Physical Medicine and Rehabilitation , Volume 97(8) , Pgs. 1284-1294.

NARIC Accession Number: J74413. What's this?
ISSN: 0003-9993.
Author(s): Hahn, Elizabeth A.; Garcia, Sofia F.; Lai, Jin-Shei; Miskovic, Ana; Jerousek, Sara; Semik, Patrick; Wong, Alex; Heinemann, Allen W..
Project Number: 90RT5008 (formerly H133B090024).
Publication Year: 2016.
Number of Pages: 11.
Abstract: Study developed and tested a patient-reported measure of access to information and technology (AIT) for people with spinal cord injury (SCI), stroke, or traumatic brain injury (TBI). A mixed-methods approach was used to develop items, refine them through cognitive interviews, and evaluate their psychometric??? properties. Item responses were evaluated with the Rasch rating scale model. Correlational and analysis-of-variance methods were used to evaluate construct validity. Community-dwelling individuals with a diagnosis of SCI, stroke, or TBI participated in cognitive interviews (12 persons), field testing of the items (305 persons), and validation testing of the final set of items (604 persons) to measure AIT for people with disabilities. A user-friendly multimedia touchscreen was used for self-administration of the items. A 23-item AIT measure demonstrated good evidence of internal consistency reliability, and content and construct validity. This new AIT measure will enable researchers and clinicians to determine to what extent environmental factors influence health outcomes and social participation in people with disabilities. The AIT measure could also provide disability advocates with more specific and detailed information about environmental factors to lobby for elimination of barriers.