Deans' stroke musings: Finally, an anonymous reply from the National Stroke Association

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, October 25, 2016

Finally, an anonymous reply from the National Stroke Association

Hi Dean,
we are so sorry that you feel so disappointed in the National Stoke Association's services and programs. We are deeply committed to providing programs and services that help stroke survivors, their loved ones, and healthcare professionals in the stroke space. Unfortunately we do not have a research arm nor the funding to deliver all the resources and programs that we would like to deliver. We are working hard on developing even more robust resources such as a survivor resource helpline, we are working on getting stroke navigator programs into each health systems across the U.S to help stroke survivor recovery / improve outcomes, and are designing a number of other programs to raise awareness of stroke risk and help overcome recovery challenges. We take our mission very seriously. We wish we could do more and we do the best we can with the resources we have. We always welcome constructive feedback and we would like to invite you to submit your ideas at anytime. We wish you the best and are looking forward to your input.

My replies:
You are not committed enough to leave your real name or contact me directly. Excuses, excuses, I've already listed what a great stroke association should be doing, you are doing none of those. First by contacting and talking to real survivors.

Who gives a shit about awareness? Survivors want results and protocols that deliver those results. I look forward to you reading all 11,000+ posts and acting on them. It is your responsibility to help survivors not mine. The monkey is on your back, deal with it.