Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:

Thursday, April 19, 2018

Research indicates there is not enough patient centricity and patient engagement in research protocols for kidney disease.

I haven't seen any calls for stroke survivor involvement in any stroke research. Until that occurs most stroke research is totally fucking useless. All primary measures should be set by survivors.

1 comment:

  1. Yes, there are SOME stroke trials, but a lot of them are rubbish, testing if physiotherapy works etc. There are very few trials with innovative treatments offered, and those that are seem to be located in the USA. I agree, if researchers asked stroke victims what they thought would be a good thing to trial, they would get some novel ideas that just MIGHT work