Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, February 18, 2019

Stroke Association UK We collaborate to ensure research results are shared openly

Old news but likely to be unhelpful.  Research is not written in plain enough language that survivors can communicate the protocols needed to be created to their doctors.  That is really the job of the Stroke Association, to communicate the protocols from research to all stroke hospitals AND make sure they are implemented in those hospitals. But that won't occur, you survivors are on your own to figure out how research will get you recovered.

Stroke Association UK We collaborate to ensure research results are shared openly

Tuesday 1 May 2018
Announced today, AMRC Open Research is a new online platform for publishing medical research findings.
The Stroke Association is one of 23 members of the Association of Medical Research Charities (AMRC) that are collaborating on the development and launch of this important new initiative.
We hope it will help charities maximise the value of the donations we receive by making it possible for all the findings from the research we fund to be rapidly and openly shared with the scientific community and public.
By removing traditional barriers and delays to publication, and making articles available in a matter of days, rather than the typical months or years that traditional publishing can take, AMRC Open Research could help accelerate our understanding of conditions and diseases that affect so many lives, including stroke.
Dr Richard Francis, Head of Research Awards at the Stroke Association said:
“We want to ensure that all the findings from our funded research, no matter how big or small, are available for all to see. This new platform will enable researchers to disseminate their findings efficiently and transparently”.

To find out more about AMRC Open Research visit the AMRC website.

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