Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, February 18, 2019

Who’s in the room when stroke is talked about?

If stroke survivors are not in your stroke conferences and guideline creations then you are missing the most important people in stroke. When your hospital has post mortem interviews on stroke rehab failures are there survivors in the room? Unless the survivor gets 100% recovered there should be a post mortem in every case to determine exactly why they didn't recover, in order to change the failure points. If your stroke hospital is not doing that you need to fire the president and the board of directors.   

Another great Seth Godin post.

Who’s in the room when stroke is talked about? 

We accidentally curate who comes to the meeting, who has a seat at the table where decisions are made. We almost randomly decide who is interviewing and being interviewed, who is brainstorming, who is reviewing the work…
What if we did it with intention? What if we thought deeply about who sits across from us during the key conversations?
Convenient should not be the dominant driver of this choice. Nor should existing protocol.
“Who’s not here?” might be the most important unasked question.

No comments:

Post a Comment