Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, December 15, 2013

Feeling grateful for you today - Jim Baranski, National Stroke Association

His email today and my response.
Dear dean,
Stroke Help Line logo


StrokeSmart magazines
As we begin to look back at 2013, I am proud of what National Stroke Association has accomplished this year—our growing programs that support the stroke community, the launch of the Stroke Help Line and the expansion of StrokeSmart® through www.strokesmart.org. It is because of the increasing partnership of the stroke community that we are able to continue to our work.
And I am so grateful for your support.
I am giving thanks this year to you. When you became a part of National Stroke Association’s community, you showed me that our presence is valuable. When you attended a program, read our materials or signed up for StrokeSmart® magazine, I felt that our work was paying off. When you answered surveys to help us serve you better, I was ready to make changes to meet your needs. And when you asked what you could do to help us do more, I knew we had a real community.
Thank you.
You drive National Stroke Association to continue to find new and innovative ways to support the stroke community. Thank you so much for standing with us over our 29-year history. We’ve been able to start new projects and raise stroke awareness in more compelling ways. For example, our Support Group and Community Outreach programming has distributed over 400 Programs-in-a-box to supports groups across the country. We know this program is an opportunity to make a significant impact and meet a real need to stroke survivors, caregivers and family members.
You have helped us reach out to even more people in exciting new ways that weren't possible when our organization began almost three decades ago.
Thank you for standing with us over the years—you help make all of our work possible.
With thanks,
signed by Jim Baranski
Jim Baranski
Chief Executive Officer


Dear Jim,
When I look over 2013 I see a vast untapped font of knowledge in stroke survivors that you are not contacting. The stroke bloggers out there, Amy, Barb, Dean,Dr. Ellen,Grace, Jo, Joyce, Rebecca, Scott, Nina, Linda, Marcelle, Kate, Jim,
know what needs to be done and your organization is not addressing any of it. With 10% full recovery and only 12% efficacy of tPA there are major opportunities that need addressing. Do you want to be known as the organization that solved the stroke problem? Then convene us knowledgeable survivors with your best people to create  5, 10, 15 and 25 year strategic plans
Stroke Tribe Dean

1 comment:

  1. I'm in a pissy mood and our crappy NSA made it worse. I'm reblogging some of your posts today on my blog....

    ReplyDelete