A long time ago in my job in technology we had a technical help desk for when programmers were stumped. They were helped by the analyst answering the phone or directed to the expert in the area. I once was perplexed by a difficult problem and called the help desk. The analyst didn't know the answer and after finding out I was supporting the life insurance area, directed me to Dean R. I was asked if I knew that person. Yeah, thats me. Recovering from stroke feels exactly the same way, there is no more knowledgeable person I can go to for answers. You could try the ASA- American Stroke Association helpline 1-888-4-STROKE but I'm sure that won't do a damn bit of good.
Or the NSA - National Stroke Association 1-800-STROKES (787-6537)
The WSO - World Stroke Organization has no numbers for survivors to contact them because they are not for survivors.
Or maybe the uk Stroke Helpline: 0303 3033 100
Or maybe The Stroke Organization at the End of the Universe -1-800-youarescrewed
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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