Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:

Wednesday, April 26, 2017

Helping Others Understand: Post-Stroke Fatigue Info Sheet

So rather than coming up with solutions they  come up with info sheets.
Info Sheet Transcript:
Just because someone is home from the hospital does not mean that all is normal and they are running on all cylinders. Their brains have been injured, and it takes time and the compassion and patience of friends for them to recover.
It is important to let survivors respond to this situation in their own way, without trying to meet the expectations of others who have not experienced a brain injury.
What to Understand About Post-Stroke Fatigue
• It is extremely common. As many as 70 percent of stroke survivors experience fatigue.
• Post-stroke fatigue can happen whether there has been any exertion or not.
• Post-stroke fatigue doesn’t always get better after a survivor takes a break, or gets rest.
• Sometimes there may be outwardly noticeable signs of fatigue, other times there may not.
• Some fatigue may be a side effect of medication.
• Post-stroke fatigue is unpredictable. Some survivors experience good days and bad days. For some it is all day, every day.
• Some survivors may be doing well then suddenly “hit a wall.”
• For some, “hit the wall” episodes may decrease over time, but they still may generally feel that they don’t have the energy to do what they want and need to do.
  • As a survivor tires:
    • they may become clumsy
    • their speech may be affected
    • their ability to understand, comprehend or
    • recall may be compromised
    • they may get irritable
    • they may experience increased emotional lability
    • (crying or laughing with no apparent trigger)
• People who have made otherwise remarkable recoveries still may not be able to return to work because of post-stroke fatigue.
What Can Help
• If energy is better at a certain time of day, take advantage and plan activity around that.
• For mental fatigue, sitting quietly with low sensory stimulation (keep noise, light and activity in the area to a minimum) may be better than a nap.
• Schedule regular rest breaks or even a nap if needed.
• Factor in fatigue before any event or activity as well as recuperation time after an event or activity.
• Survivors with fatigue should be conscientious about maintaining energy reserves, rather than pushing themselves into exhaustion.
Family members and friends can help by coming from a position of compassion and understanding rather than the expectation that everything should be better.
Others can’t always see it, but post-stroke fatigue can be quite limiting.

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