Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, April 8, 2017

The Language of Recovery: How Effective Communication of Information Is Crucial to Restructuring Post-Stroke Life

My doctor told me absolutely nothing about my stroke or how to recover from it.  I highly doubt a paper like this will change his approach. He pooh-poohed a research paper I asked him about.
http://www.tandfonline.com/doi/abs/10.1310/NPC4-01YV-P66Q-VM9R

Sharon Anderson & Nancy J. Marlett
Pages 55-67 | Published online: 02 Feb 2015
 
Translator disclaimer
Abstract
Background: Providing appropriate and effective information to people with stroke and their families has been identified as a key component to successful practice. Researchers continue to focus on “lack of information” as being the lack of specific technical medical information rather than the communication of practical knowledge and how people use that knowledge to restructure life after stroke. To meet patients’ expectations and achieve better outcomes in stroke, professionals need access to communication theory, research, and training.  
Objectives: Improve stroke communication systematically.  
Method: This article will examine stroke communication using a three-part framework: 1. Utilize theory to clearly conceptualize how communication influences stroke outcome. 2. Identify components and mechanisms of communication content to positively influence stroke outcome. 3. Develop goals and strategies for putting content skills into stroke communication practice. Conclusion: Relatively little is known about the content and structure of informal communication transactions between stroke survivors, families, and health care professionals and how they accommodate (or resist) realignment of identity after stroke. The professional discourse attempts to ensure realistic expectations of recovery whereas stroke survivors and families complain about the negative discourses, how possibilities for life after stroke are presented, and the hopelessness that this creates. More research is required into how these different discourses affect outcomes.
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