Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, October 6, 2017

If you can't see the problems in stroke, how can you make it better?

This is where the whole fucking stroke medical world has their head so far up their ass they can't see a damn thing. As evidenced by last years World Stroke Day meme; 'Stroke is Treatable'

Fucking hell it isn't; you mean you don't think any of these are problems?

1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke rehab protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals. 

Seth's Blog : If you can't see it, how can you make it better?

It doesn't pay to say to the CFO: These numbers on the P&L aren't true.
And arguing with Walmart or Target about your market share stats doesn't work either.
You can't make things better if you can't agree on the data.
Real breakthroughs are sometimes accompanied by new data, by new metrics, by new ways of measurement. But unless we agree in advance on what's happening, it's difficult to accomplish much.
If you don't like what's happening, an easy way out appears to be to blame the messenger. After all, if the data (whether it's an event, a result or a law of physics) isn't true, you're off the hook.
The argument is pretty easy to make: if the data has ever been wrong before, if there's ever been bias, or a mistake, or a theory that's been improved, well, then, who's to say that it's right this time?
"Throw it all out." That's the cowardly and selfish thing to do. Don't believe anything that makes you look bad. All video is suspect, as is anything that is reported, journaled or computed.
The problem is becoming more and more clear: once we begin to doubt the messenger, we stop having a clear way to see reality. The conspiracy theories begin to multiply. If everyone is entitled to their own facts and their own narrative, then what exists other than direct emotional experience?
And if all we've got is direct emotional experience, our particular statement of reality, how can we possibly make things better?
If we don't know what's happened, if we don't know what's happening, and worst of all, if we can't figure out what's likely to happen next, how do take action?
No successful organization works this way. It's impossible to imagine a well-functioning team of people where there's a fundamental disagreement about the data.
Demand that those you trust and those you work with accept the ref's calls, the validity of the x-ray and the reality of what's actually happening. Anything less than that is a shortcut to chaos.

 

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