Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, October 22, 2017

Stroke patient warned she would not recover by NHS doctors is back to health after treatment in South Africa

The doctors knew this negative comment would inspire action the reverse of the standard nocebo effect. 'I will prove to you that you idiotic doctors know nothing'. See how smart those doctors were?
http://www.telegraph.co.uk/science/2017/09/02/stroke-patient-warned-would-not-recover-nhs-doctors-back-health/?
 

A stroke patient who was warned she had ‘no capacity for recovery’ by NHS doctors is almost back to full fitness after her husband took her for rehabilitation in South Africa.
Rita Guthrie, a former laboratory chemist of Essex, was given just 30 per cent chance of survival and left physically and mentally disabled following a hemorrhage in 2008. She could barely walk, her behaviour became erratic and she was left permanently incontinent.
After two years of sporadic care by the NHS and social services, her husband David was told there was no chance she could get any better, and was advised to move her to a care home.
 


It’s a sad state of affairs that Rita’s recovery relied on the manpower and expertise of another nationDavid Guthrie
However after a friend suggested the couple try a change of climate, Mr Guthrie took his wife to Fish Hoek near Cape Town where she underwent 18 months of intensive rehabilitation over several years, which included tailor-made exercises, walking  and hydrotherapy.


Now mother of-three Mrs Guthrie, 78, is back to full health, and has only been left with damage to her short term memory.
Mr Guthrie has written a new book, entitled Pushing the Boundaries, to encourage other Britons in a similar situation to look elsewhere for treatment. All profits will go to stroke charities.
“The experience was awful for both of us and I hate to see anyone else having to go through a similar situation,” said Mr Guthrie, 80, who met his wife when they both worked UK Atomic Energy Authority at Dounreay, Caithness.
“The lack of support or practical help from the outset in the UK left Rita being diagnosed as having ‘no capacity for recovery.
“The treatment available locally for Rita in no way matched the well-documented recommendations, such as the National Stroke Strategy, for Stroke recovery in the UK. Nor did I receive any form of training in how to cope as a carer.
“The South African therapists started with the positive assumption that Rita was able to recover, a full about turn from the conclusions drawn by our own health system which had taken a very negative view of her prospects.”


Around 152,000 people in Britain suffer a stroke each year and two thirds of those will leave hospital with a disability.  But recent figures from the Chartered Society of Physiotherapy found 85 per cent of health trusts do not offer stroke victims physiotherapy within two weeks of leaving hospital. A fifth make them wait at least 13 weeks and 4 per cent cannot offer sessions until after 18 weeks.
Figures by the Stroke Association show that nearly half of stroke survivors feel abandoned when they leave hospital, a finding that the charity described as ‘deeply concerning.’
A survey of more than 1,000 patients for the charity found more than one third reported that they returned home without a care plan or appropriate support in place for their recovery.
Almost half said they were not contacted by a healthcare professional when they returned home from hospital while 39 per cent said they did not received a six month assessment of their social care needs.


Mrs Guthrie’s entire treatment programme in South Africa is estimated to have cost £20,000, less than half of the annual cost of a care home in Britain.
“It is nonsense to suggest that the straightforward therapy used in Fish Hoek could not be easily set up in the UK,” said Mr Guthrie.
“Seven years on from that trip to South Africa, Rita is almost back to full health although short term memory can be a little suspect at times.
“Apart from that she’s as fit and alert as any 78-year-old would expect to be. I’ve got my wife back. We are able to do five kilometre hikes together and she was able to nurse me when I developed pneumonia.
“It’s a sad state of affairs that Rita’s recovery relied on the manpower and expertise of another nation but I hope ‘Pushing the Boundaries’ and other similar stories of fortitude can help to change our mindset in the UK.”
Pushing the Boundaries, a Personal Account of Recovery from Stroke” is available through York Publishing Services Ltd and on Amazon.

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