Deans' stroke musings: Stroke survivors the 'poor relatives' of health

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, March 30, 2023

Stroke survivors the 'poor relatives' of health - Portugal

This is where YOU need to get involved and demand recovery and results; NOT THIS CRAPOLA OF ACCESS!

Access is useless unless you have EXACT REHAB PROTOCOLS!

Stroke survivors the 'poor relatives' of health - Portugal

The Portugal AVC association has defended a strategy for the rehabilitation of stroke survivors, an area that remains the “poor relative” of the health system.

By TPN/Lusa, in News, Portugal, Health · 1 day ago · 0 Comments

"What is missing is exactly - and as the recommendation to the Government that was approved in the Assembly of the Republic said more than a year ago - to define and implement a strategy for access to rehabilitation for all" those who have suffered a stroke, said the president of the association created in 2016.

António Conceição said that this will be one of the topics being debated in parliament, in a session regarding the National Day of the Stroke Patient, which is marked on March 31, and which aims to contribute to greater political and media visibility on the main cause of death and disability in Portugal.

In November 2021, parliament unanimously approved a resolution recommending the Government to develop, within three months, a strategy for access to rehabilitation care “effective, multidisciplinary and nationwide for survivors” of stroke.

The resolution also asked the executive to reinforce the rehabilitation teams in all hospital and extra-hospital centres, by hiring rehabilitation professionals, for the complete constitution of multidisciplinary teams.

“Glaring disparities”

About 15 months after its publication in Diário da República, “this is a question we are going to ask. What has been done and is being done to define this strategy for rehabilitation?”, said António Conceição, for whom the “current state of things is the same or worse than it was at the time”.

According to the president of Portugal AVC - União de Sobreviventes, Familias e Amigos, the country presents a “dramatic panorama” in terms of rehabilitation care for those who survive a stroke, with “glaring disparities”.

“It is dramatic because there is a lack of responses from the National Health Service, but not only that. First of all, this rehabilitation has to be seen as multidisciplinary and timely(But it mainly needs to be effective!). Each stroke has very different consequences from person to person”, said António Conceição.

According to the president of the association, rehabilitation care therefore has to cover areas such as physiotherapy, speech and occupational therapy, nursing, psychology and nutrition, among others.

In most cases, rehabilitation is the responsibility of private and social entities, “where the quality offered – and which in general is just physiotherapy – leaves much to be desired”, warned the head of AVC Portugal, noting that “there is no control over the quality” of this care.(You don't want 'care', you want RECOVERY AND RESULTS!)

In addition to reinforcing the number of health professionals for the various areas, greater control of the quality of rehabilitation available in Portugal is necessary, to minimise the “huge inequalities that are practiced” depending on the hospital unit in which the patient is treated , geographic location, economic capacity, among other factors

António Conceição also added that the latest figures provided by the Directorate-General for Health, referring to 2016, pointed to around 25,000 cases per year in Portugal and that, according to INE data for 2020, strokes remained the main cause of death, even ahead of Covid-19.