Deans' stroke musings: Perceptions of stroke recovery: An exclusion of communication and cognition

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, June 7, 2014

Perceptions of stroke recovery: An exclusion of communication and cognition

My perception of my physical recovery is that it sucks, I am nowhere near close to my abilities pre-stroke. My cognitive abilities at least match and may exceed my pre-stroke abilities.
http://search.naric.com/research/rehab/redesign_record.cfm?search=2&type=all&criteria=J68040&phrase=no&rec=124142
NARIC Accession Number: J68040. What's this?
ISSN: 1053-8135.
Author(s): Ellis, Charles; Focht, Kendrea L.; Grubaugh, Anouk L..
Publication Year: 2013.
Number of Pages: 7.
Abstract: Study explored stroke survivors’ perceptions of their own recovery and residual impairments with specific emphasis on communication and cognition. Nine stroke survivors participated in a focus group discussion as part of a larger study designed to examine post-stroke outcomes. Early in the focus group proceedings, a discussion emphasizing how stroke survivors perceive their overall recovery emerged. Six of the nine participants (67 percent) perceived their overall stroke recovery to be greater than 90 percent, and only physical impairments were reported. Later in the course of the interview, eight of the nine participants (89 percent) reported either word retrieval or memory loss deficits which negatively influenced their daily functional activities. Stroke survivors in this study did not include communication and cognitive deficits in their perception of their overall recovery despite later reporting these symptoms and related impairment. Failure of patients to include such persisting deficits in their reports of recovery can cause a mismatch between stroke survivor and healthcare provider goals.