Deans' stroke musings: Would you like to learn more about our clinical trials? HSF Canadian Partnership for Stroke Recovery

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, August 27, 2017

Would you like to learn more about our clinical trials? HSF Canadian Partnership for Stroke Recovery

Get involved.
http://www.canadianstroke.ca/en/resources/patients-and-carers/
Would you like to learn more about our clinical trials? Are you interested in participating in a trial involving our researchers? Visit the Heart and Stroke Foundation clinical trials site HERE.
Learn more about CPSR studies that are actively recruiting patients: http://www.canadianstroke.ca/en/research/recruiting-studies/
Email research@canadianstroke.ca to learn more and get involved!

Resources

HSF Canadian Partnership for Stroke Recovery has created a 60-page resource guide on Stroke in Young Adults, which can be downloaded HERE. We welcome your feedback on the content of this guidebook, which will be updated on an ongoing basis with the input of end-users. Please email cathy@canadianstroke.ca to provide your comments, suggestions and feedback.
A focus of the HSF Canadian Partnership for Stroke Recovery is the role of exercise in improving physical and cognitive recovery after stroke. As such, we have developed two resource guides – one for PATIENTS and one for CLINICIANS. Both are based on best practice recommendations.
The HSF Canadian Partnership for Stroke Recovery supports two very important resources that provide research evidence on stroke recovery:
1. Stroke Engine includes all the latest research evidence on therapies for stroke recovery. Stroke Engine is a leading international tool, used by patients, families and clinicians. This easy-to-navigate site bridges the gap between research findings and clinical practice. strokengine.ca.
2. The Evidence-based Review of Stroke Rehabilitation provides valuable research evidence into stroke recovery. The tool feeds academic research and informs best practices. The EBRSR includes in-depth reviews of well over 2,000 studies including 1,431 randomized controlled trials. Parts of the EBRSR have been translated into a number of languages. www.ebrsr.com.
The Heart and Stroke Foundation has developed an excellent selection of resources, tools, workbooks, action plans and videos around stroke recovery and secondary stroke prevention.
This useful SupportGroupToolkit-EN1 provides tools and resources for individuals seeking to establish a community stroke recovery support group. It has sample news releases, checklists, and more!
A stroke recovery workbook, produced by the Canadian Stroke Network, includes tools and activities to guide stroke recovery. Getting On With the Rest of Your Life After Stroke: http://www.strokebestpractices.ca/wp-content/uploads/2011/09/GettingOn2-EN1.pdf

The HSF has produced a new resource: Taking Action for Optimal Community and Long-Term Stroke Care. Closely linked with the HSF Canadian Stroke Best Practice Recommendations, TACLS is an evidence-based resource that provides guidance around how to provide safe care for people who have had a stroke and are living in community and long-term care settings. Developed primarily for healthcare workers such as personal support workers, health care aides, home care attendants, and rehabilitation assistants, it can also be used by organizations engaged in education or orientation for these healthcare providers, and any other healthcare professionals who work with people who have had a stroke and their families. This resource can be downloaded from the Canadian Stroke Best Practices website at http://www.strokebestpractices.ca/index.php/taking-action-for-optimal-community-and-long-term-stroke-care-a-resource-for-healthcare-providers-tacls/
HSF has created a handy tool, called the Heart and Stroke Foundation Stroke Resources Directory. It links people recovering from stroke with the closest and most relevant resources in their communities. The directory includes searchable resources and services by region as well as hyperlinks or contact telephone numbers.
This website, created by the Canadian Pediatric Stroke Support Association (CPSSA), is for families affected by pediatric stroke.
Hypertension Canada provides tips and advice on reducing dietary sodium and managing blood pressure. www.sodium101.ca
A Patient and Family Guide to Pediatric Stroke is designed to provide basic information about stroke and stroke care to families of children who have had a stroke. Much of the information in this guide comes from stroke experts and from families who have experienced childhood stroke and are sharing their stories.
The Patient and Family Guide to Canadian Best Practice Recommendations for Stroke Care:  Canadian Best Practice Recommendations for Stroke Carehave been developed by stroke experts across the country. This guide provides patients and families with practical information drawn from the recommendations.
Ontario Stroke Network has a very useful collection of stroke rehabilitation resources.
Check out our Stroke Recovery Hangout on YouTube here: http://www.youtube.com/watch?v=3hyLgpUWP0s
7 Steps to Stroke Recovery is a great video produced by the Stroke Recovery Association of BC. https://www.youtube.com/watch?v=GHJL42xFuz8
Listen to survivors’ stories about Life After Stroke and Hope, also produced by the Stroke Recovery Association of BC: https://www.youtube.com/watch?v=Kk4bfU11K64