With no stroke protocols out there this is what can be expected. Failure to recover.
http://www.royalgazette.com/health/article/20170821/stroke-victims-family-system-falls-short
A stroke victim’s once promising recovery is faltering in the absence
of comprehensive follow-up services, according to her loved ones.
As The Royal Gazette
explores healthcare deficiencies for the disabled, one anonymous family
have credited the early support they received — but said they were now
struggling to keep the ailing woman out of a home.
“My intent is
not to discredit or demoralise the Government’s helping agencies, but to
bring to attention where the system falls short in the hope of
improving it,” her brother said. “We are grateful for the services that
were provided, although they were limited.”
Exactly what struck her remains unknown: ten years ago, the woman had a stroke at the same time as a traffic accident.
“We never found out which came first,” he said.
“We
took her to Boston for treatment. Then she was in the hospital here for
a few months. After they felt they could not do any more with her, she
was brought home.
“At that stage, she was walking with a cane, and able to get out of bed, clean her teeth, wash her face, get breakfast.”
Rehabilitation
restored much of her speech, he added: “She came back a long way. But
then she started falling in the house, losing her balance a lot.
“That was about a year and a half ago. She lost her confidence.
“We
were finding her with bruises and bumps on her head. Eventually, as a
family, we decided to put her in a wheelchair. We were concerned she
might hurt herself.”
That decision was “probably the wrong thing”, he admitted: his sister’s muscles began to seize up.
So far, she has spent 2017 confined to her chair.
But when her family sought additional rehabilitation and physiotherapy at the hospital, they were told to keep her at home.
“This
is where the downfall starts,” he said. “There was a shortage of
personnel. They could come once a week or every two weeks. They did
their best, but obviously that was not enough for her. Another thing I
must point out is that she was her own worst enemy. She was not
forthcoming in doing her part.”
The family believe that the stroke damaged the woman’s ability to reason, leaving her “argumentative”.
“She
went to Ageing and Disability Services, and to the Mid-Atlantic
Wellness Institute. We were concerned about her mental health. The
services provided were minimal. I was expecting her to be put in some
sort of programme. But the only advice from the doctor at MWI was for
family members to stay away and let the caregivers deal with her. That
really discouraged me.”
As the woman’s speech declined, becoming
slurred, she was brought before a hospital therapist who, after ten
minutes, told her brother to practise with her at home.
“That was it,” he said. “I expected more.”
He commended Financial Assistance and Government health insurance for helping with daycare and nursing.
“The
Government agencies prefer to have families care for their loved ones.
That’s what I am trying to do. But it gets difficult without proper
professional care. It is obvious that there is insufficient personnel
and money available. We may have to put her in a home. I don’t wish to
fully blame the system for my sister’s position.
“She has to take some blame for her failure — and also me, I guess. I didn’t challenge it. I accepted it and moved on.
“Her
failure to recover is partly due to her negativity and not putting in
the work. I do have to commend the physiotherapy staff for their time
and professionalism. But my frustration is still there.”
A
spokeswoman for the Bermuda Hospitals Board said that patient
confidentiality prohibited comment on individual treatment. “We do have a
Patient Advocate on staff who can be contacted to investigate any
concerns and who will also work to implement changes where necessary,”
she added. “We invite the gentleman quoted in this article to contact
our patient advocate by calling 236-2345 or by e-mailing feedback@bhb.bm.”
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