Deans' stroke musings: Representativeness of the traumatic brain injury model systems national database

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, February 12, 2013

Representativeness of the traumatic brain injury model systems national database

So where is the national stroke database? A Great stroke association would have created one years ago.
http://search.naric.com/research/rehab/redesign_record.cfm?search=2&type=all&criteria=J64950&phrase=no&rec=120186
Journal of Head Trauma Rehabilitation , Volume 27(6) , Pgs. 391-403.

NARIC Accession Number: J64950. What's this?
ISSN: 0885-9701.
Author(s): Corrigan, John D.; Cuthbert, Jeffrey P.; Whiteneck, Gale G.; Dijkers, Marcel P.; Coronado, Victor; Heinemann, Allen W.; Harrison-Felix, Cynthia; Graham, James E..
Project Number: H133A060038, H133A070022, H133A070029, H133A070033, H133A080045.
Publication Year: 2012.
Number of Pages: 13.
Abstract: Study investigated whether the Traumatic Brain Injury Model Systems National Database (TBIMS-NDB) is representative of individuals aged 16 years and older admitted for acute inpatient rehabilitation in the United States with a primary diagnosis of traumatic brain injury (TBI). A secondary analysis of existing data sets compared patients admitted to acute inpatient rehabilitation facilities with subjects included in the TBIMS-ND from October 2001 through December 2007. Variables of interest were demographic characteristics, functional status, and hospital length of stay. Results indicated that patients included in the TBIMS-NDB were largely representative of all individuals 16 years and older admitted for rehabilitation in the United States with a primary diagnosis of TBI. The major difference in distribution was age; the TBIMS-NDB cohort did not include as large a proportion of patients older than 65 years as were admitted for rehabilitation. Distributional differences for age-related characteristics were observed; however, groups of patients partitioned at aged 65 years differed minimally, especially within the younger than 65 years subset. Regardless of age, the proportion of patients with a rehabilitation stay of 1 to 9 days was larger nationwide. Nationwide admissions showed an age distribution similar to patients discharged alive from acute care with moderate, severe, or penetrating TBI. The proportion of patients aged 70 years and older admitted for TBI rehabilitation increased every year, a trend that was not evident in the general population, TBIMS-NDB, or among TBI patients in acute care.