Deans' stroke musings: NSA begging email - What will help you raise stroke awareness? T-shirts? Magnets? Tell us.

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, February 26, 2013

NSA begging email - What will help you raise stroke awareness? T-shirts? Magnets? Tell us.

My response in one of the open questions. Some day they will finally contact me and ask me to shut up.

If you want support you will have to be survivor focused, support research, have a survivor board of directors and a survivor president

Having trouble? View this message on our website.

Dear dean,

As a loyal supporter of National Stroke Association, you have been selected to be part of an exclusive study on how we can help you raise awareness about stroke. We want to know what types of items would help you inform others about stroke and how you can become empowered as an individual impacted by it.

As you know, many empowered communities raise awareness about disease states, such as breast cancer, mostly by wearing certain colors or articles of clothing with pride. Things as simple as a polo shirt, a bracelet, a refrigerator magnet or post-it notes can inform others about a cause. National Stroke Association knows that you and others in the stroke community want these types of resources—and we’re committed to providing them.

But we can’t do it without your help. Your input is essential, because your needs determine what we can provide to you. I invite you to help us by participating in a short online survey about the types of items and resources that would help you raise awareness and educate others. You can answer the survey as a survivor, a caregiver, healthcare professional or a stroke survivor’s loved one.