Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, February 17, 2013

Why is there no stroke blogosphere?

There are lots of stroke survivors writing and commenting but I have yet to find any stroke doctors out there, Toni Patt and Peter Levine seem to be the only therapy related bloggers.
Brooks Rehabilitation and International Journal of Stroke exist but do not engage in any discussions that I can see.
Considering all the bomb throwing I've done I'm surprised I've gotten no pushback.  I doubt that I'm so perfectly accurate that there is no defense against my comments.
My take is that doctors are embarrassed about the lack of recovery they can provide, and the indefensible state of stroke protocols.
I would think there would be massive discussions on the 12% efficacy of tPA and the appalling  10% full recovery rate. Why those problems exist and how to correct them.
Wikipedia defines the blogosphere
You can see an analysis of the neuroscience blogosphere here;
http://neuroecology.wordpress.com/2013/10/14/why-is-there-no-neuroscience-blogosphere/
Why does the neuroscience blogosphere suck?

Much more at link.
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2 comments:

  1. J.L. MurpheyOctober 18, 2013 at 7:38 AM

    Dean, I believe they would have to admit, "I don't know." They are bound by privacy acts.They are afraid of being sued or causing their brethren to be sued.

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    Replies
    1. oc1deanOctober 18, 2013 at 10:04 AM

      But then they really should be concerned about their future patients suing them for not keeping up with newer possibilities. This doesn't quite fall into standard of care but I'm sure a good lawyer could come up with negligence of some sort.

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