Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, April 7, 2013

Getting my arm to hang straight

Initially, getting out of the hospital after 5 weeks, walking with the cane would have the left arm hanging pretty straight.  Sometime around 6 months my bicep started its spasticity. If I walked more than 6 blocks, it would start to dangle normally. Yesterday I walked in the woods for 2 hours, mainly to clear brambles with my pruning saw and shears. One time as I'm reaching in to cut a branch my left hand is resting against one of the bramble branches. I don't have enough control to get it out of the way, so I ended up with 3 holes in my hand, dripping blood. Its all good, extra sensation which I need.  At the end of the walk my arm was finally swinging freely. So right now its a 2 hour process to stop my bicep spasticity.  Is there anyone in the world who can tell me how to achieve that faster? And botox/phenol is not the answer.

5 comments:

  1. Instead of hacking at my arm/hand with with a saw, I find that using those spastic muscles enough to fatigue them gets them to go flaccid. Obviously it doesn't always work or there would be no clenched fists among us. Maybe voluntary vs. involuntary matters.

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    2. Thats what i think happened after two hours, the bicep got tired of bending the arm and finally gave up.
      I prefer a chainsaw, its faster and has more dangerous connotations.

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  2. P.S. You and I have very different spasticity levels: I had exactly zero when I left rehab after 4 weeks; it first showed up in my arm several months later, and my hand long after that.

    And why is Botox not the answer? My physiatrist is injecting me mid-May, but only my finger flexors, no biceps.

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    1. The last time I had botox for my toes it lasted all of one week. I don't trust doctors anymore, at least not new ones.

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