Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, February 11, 2014

Satisfaction with care and rehabilitation among people with stroke, from hospital to community care

Why would you expect satisfaction when only 10% fully recover? And having rehab performed by a professional doesn't mean anything when they still don't know what they are doing.
The conclusion is wrong, you need to stop the neuronal cascade of death resulting is much less disability. They can't think outside their own silo.
http://onlinelibrary.wiley.com/doi/10.1111/scs.12116/abstract;jsessionid=20D81ED08D41E6B1BCC06E1CA1A6F803.f04t03?deniedAccessCustomisedMessage=&userIsAuthenticated=false
  1. Helena Tholin MSc, RPT Physiotherapy Supervisor1,2,*,
  2. Anette Forsberg PhD, RPT Lecturer1,3
Article first published online: 5 FEB 2014
DOI: 10.1111/scs.12116

Keywords:

  • stroke;
  • quality of care;
  • rehabilitation;
  • patient participation;
  • qualitative approaches;
  • research in practice

Background

Despite recent improvements in Swedish stroke care some patients still experience a lack of support and follow-up after discharge from hospital. In order to provide good care according to the National Board of Health and Welfare, systematic evaluations of stroke care must be performed. Quality indicators in the national guidelines could be useful when measuring quality of care in all parts of the stroke care chain.

Aim

To investigate how people with stroke experienced their care, rehabilitation, support, and participation from hospital to community care.

Method

Qualitative interviews were performed with 11 people in 2009–2010 covering their experiences of care, rehabilitation, support, and participation. The interviews were analysed with qualitative content analysis.

Result

The interviewees were satisfied with their hospital care, but reported both positive and negative experiences of the continuing care. Most of them appreciated intense, specific, and professional rehabilitation, and had experienced these qualities in the rehabilitation they received in most parts of the stroke care chain. Those who received support from the community services expressed satisfaction with the staff, but also felt that autonomy was lost. Several did not feel involved in the health care planning, but instead relied on the judgement of the staff.

Conclusion

To ensure high quality throughout the whole stroke care chain, people with stroke must be invited to participate in the care and the planning of care. To offer evidence-based stroke rehabilitation, it is important that the rehabilitation is specific, intense, and performed by professionals, regardless of where the rehabilitation is performed. A changed view of the patient's autonomy in residential community services should be developed, and this process must start from the staff and residents.

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