Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:

Tuesday, February 25, 2014

Early strokes leave many young adults with long-lasting disability

These people writing this have no brains at all.
One-third of people who survive a stroke before age 50 are unable to live independently or need assistance with daily activities 10 years after their stroke, according to research in the American Heart Association journal Stroke.
About 10 percent of strokes occur in 18- and 50-year-olds.
“Even if patients seem relatively well recovered with respect to motor function, there may still be immense ‘invisible’ damage that leads to loss of independence,” said Frank-Erik de Leeuw, Ph.D., senior author of the study and associate professor of neurology at the Radboud University Nijmegen Medical Center in the Netherlands.
Researchers assessed the function of 722 people who had a first stroke when they were age 18-50. After an average follow-up of nine years, about one-third had at least moderate disability, requiring assistance for some activities. Many were also unable to conduct routine tasks independently, such as caring for themselves, doing household chores or looking after their finances.
Upon closer investigation, researchers found the rate of poor functional outcome and the ability to live independently varied by type of stroke:
  • After a transient ischemic attack (TIA, or ‘mini-stroke’), 16.8 percent had functional disability and 10.8 percent had poor skills for independence.
  • After an ischemic stroke, caused by a blood clot in the brain, 36.5 percent had functional disability and 14.6 were unable to live independently.
  • After a hemorrhagic stroke, caused by a brain bleed, 49.3 percent had functional disability and 18.2 percent didn’t have the skills for independent living.
“Most doctors view young stroke patients as a group with great recovery opportunities,” de Leeuw said. “But our study is the first to show these almost life-long effects of stroke on performance. This is important to communicate right from the start to patients and families.”
Patients fared worse if they experienced another stroke during the follow-up period. Of the 91 patients who did: 54.9 percent were at least moderately disabled, compared with 28.7 percent of those without a recurrent stroke; and 33.3 percent were dependent on others in activities of daily living, compared with 11.5 percent of those without a recurrent stroke.
The researchers are investigating factors most responsible for poor functional outcome.
“We don’t know if it’s cognition, depression, problems in their families or relationships or other factors, but once we do, we can develop more effective interventions,” de Leeuw said.
My God, the stupidity involved in that statement, you stop the neuronal cascade of death, less disability results - better outcomes.
Co-authors are Nathalie E. Synhaeve, M.D.; Renate M. Arntz, M.D.; Noortje A.M. Maaijwee, M.D.; Loes C.A. Rutten-Jacobs, M.Sc.; Hennie C. Schoonderwaldt, Ph.D.; Lucille D.A. Dorresteijn, M.D.; Paul L.M. de Kort, Ph.D.; and Ewoud J. van Dijk, Ph.D. Author disclosures are on the manuscript.
The Dutch Epilepsy Fund supported the study.

1 comment:

  1. Yes, brilliant: it would be interesting to know the reason for my failure to recover -- was it "cognition, depression, problems in my family or other relationship, or some other factors?" Or was it that I was 52? Even at 52, I was told that I had a good chance of complete recovery because I was "young," by stroke standards. Why, again, didn't that happen? Yup, let's blame something other than ignorance in the broke rehab medical establishment.