At least this group is trying something as compared to our fucking failures of stroke associations.
https://alz.org/news_and_events_105434.asp
The Alzheimer’s Association and the Alzheimer’s Impact Movement (AIM) are proud to support the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act,
new bipartisan legislation prioritizing our nation’s approach to
Alzheimer’s disease. The BOLD Infrastructure for Alzheimer’s Act was
introduced by Senators Susan Collins (R-Maine), Catherine Cortez Masto
(D-Nev.), Shelley Moore Capito (R-W.Va.), Tim Kaine (D-Va.), and by
Representatives Brett Guthrie (R-Ky.), Paul Tonko (D-N.Y.), Chris Smith
(R-N.J.) and Maxine Waters (D-Calif.). The legislation was developed in
close partnership between the sponsors, the Alzheimer’s Association and
AIM.
“Too often, Alzheimer’s and other dementias are viewed just as an
aging issue, ignoring the public health consequences of a fatal disease
that more than 5 million Americans are living with,” said Harry Johns, Alzheimer’s Association and AIM President and CEO.
“The BOLD Infrastructure for Alzheimer’s Act will ensure communities
across the country have access to resources to promote effective
Alzheimer’s interventions and better cognitive health that can lead to
improved health outcomes.”
The BOLD Infrastructure for Alzheimer’s Act would establish
Alzheimer’s Centers of Excellence in communities around the country to
expand and promote the evidence base for effective Alzheimer’s
interventions, and issue funding to state and local public health
departments to promote cognitive health, risk reduction, early detection
and diagnosis, and the needs of caregivers. Critically, the BOLD
Infrastructure for Alzheimer’s Act would also increase collection,
analysis and timely reporting of data on cognitive decline and
caregiving to inform future public health actions.
“Alzheimer’s disease is one of the greatest and under-recognized
public health threats of our time. Five and a half million Americans are
living with the disease, and that number is soaring as our overall
population grows older and lives longer,” said Sen. Collins. “After
decades of expanding biomedical research in Alzheimer’s, we are ready
for the next step: to translate research into practice. I urge my
colleagues to join us as cosponsors of this critical bipartisan
legislation.”
“As one of the leading causes of death in the United States,
Alzheimer’s prevention is crucial to combating this debilitating
disease,” said Sen. Masto. “The number of Americans
afflicted with this illness is growing at a staggering pace, and without
intervention, as many as 16 million Americans could be living with the
disease by 2050. The BOLD Infrastructure for Alzheimer’s Act will
address the scourge of Alzheimer’s by creating centers of excellence and
assisting state and local governments in their efforts to promote
awareness through education and dissemination of best practices. We must
work to promote Alzheimer’s prevention, enhance access to treatment,
improve patients’ quality of life and find ways to end Alzheimer’s
before it claims more lives.”
At an estimated cost of $259 billion annually — including $175
billion in Medicare and Medicaid payments — Alzheimer’s is the most
expensive disease in the country, and is the only leading cause of death
in the U.S. that cannot be prevented, cured or even slowed.
“Alzheimer’s is the costliest disease in America, with over 5 million
Americans living with this disease. Almost every Kentuckian I know is
affected by this disease in some way, and many have become caregivers
for their family members suffering from Alzheimer’s. That’s why I was
proud to join a bipartisan, bicameral group of members to introduce the
Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act.
This bill supports cooperative agreements between public and private
entities focused on ways to develop best practices for intervention and
caregiving, which will help lower costs and promote evidence based
research for those who suffer from this awful disease and for those who
care for these individuals,” said Rep. Guthrie.
“From my very first days in Congress, I have worked to improve the
lives of those suffering from Alzheimer’s disease and help modern
medicine move closer to finding a cure. Through the Alzheimer’s
Accountability Act and the HOPE for Alzheimer’s Act, we laid the
groundwork for unprecedented federal investments in Alzheimer’s research
and improved care planning for those facing an Alzheimer’s diagnosis.
Now we have a critical opportunity to take another giant step forward on
this issue, making investments in Alzheimer’s infrastructure that will
drive public health research and promote prevention, early detection and
diagnosis, all leading to lower costs and better care. I’m proud to
stand alongside my fellow Alzheimer’s champions in introducing the BOLD
Infrastructure for Alzheimer’s Act and I look forward to getting this
important legislation signed into law,” said Rep. Paul Tonko.
“We are grateful for the bipartisan support by the BOLD
Infrastructure for Alzheimer’s Act’s sponsors and for their continued
leadership in the fight to end Alzheimer’s,” said Robert Egge, Alzheimer’s Association chief public policy officer and AIM executive director.
“While we work towards the development of effective preventions and
treatments for Alzheimer's, we must implement effective public health
solutions today that can help to improve the lives of and outcomes for
those living with the disease.”
“Alzheimer’s is such a devastating disease that affects millions of
Americans and their loved ones, and the more we can do to find a cure,
the better. At the same time, we must also do what we can to ease the
pain of those suffering and provide help to caregivers, taking a truly
comprehensive approach to this fight,” Sen. Moore Capito said.
“By creating a public health infrastructure, this bipartisan
legislation will help us tackle Alzheimer’s on all fronts and move us
closer to finding a cure.”
“As the number of people diagnosed and living with Alzheimer’s
disease continues to grow, we have to help alleviate the burden this
disease has on our health care system and families across Virginia,”
said Sen. Kaine. “The BOLD Infrastructure for
Alzheimer’s Act addresses a problem I often hear from Virginians: how do
we improve care for loved ones who are battling Alzheimer’s? States
often lack resources that would help caregivers address patient needs.
This bipartisan bill would improve care and outcomes by providing a full
range of information and support to families caring for loved ones with
Alzheimer’s, and boosting local efforts dedicated to addressing this
pressing public health need. We are also extremely thankful for the
support of the Alzheimer’s Association on this bill, and the work its
local chapters do in communities across America to help patients and
their families and raise awareness about the disease.”
In 2005, the Alzheimer’s Association and the Centers for Disease
Control and Prevention (CDC) partnered to create and launch the Healthy
Brain Initiative (HBI) and developed the Public Health Road Map. The HBI
Road Map includes actions for state and local public health departments
to promote cognitive functioning, address cognitive impairment and help
meet the needs of caregivers. The BOLD Infrastructure for Alzheimer’s
Act would increase implementation of the HBI Road Map nationwide.
“Many, many family and friends of Alzheimer’s patients sacrifice
their time and resources to assist their loved ones who are unable to
care for themselves. We must ensure they have as much support as
possible,” said Rep. Smith. “As the number of
Alzheimer’s patients is expected to multiply in the coming decades, we
must increase funding for vital research and education on how to help
patients and their caregivers cope with it. This has become a moral
imperative.”
“I am proud to join my colleagues to introduce the BOLD
Infrastructure for Alzheimer’s Act. This innovative bill will promote
early detection and diagnosis, support caregivers, and reduce health
disparities related to the care and treatment of Alzheimer’s patients,”
said Rep. Waters.
Former U.S. Surgeon General and CDC Director Dr. David Satcher has
said, “Alzheimer’s is the most under-recognized threat to public health
in the 21st century.” The Alzheimer’s Association, working through the
Alzheimer’s Impact Movement and its advocates, will work to gain further
bipartisan support for the BOLD Infrastructure for Alzheimer’s Act in
the 115th Congress.
Alzheimer's Association®
The
Alzheimer's Association is the leading voluntary health organization in
Alzheimer's care, support and research. Our mission is to eliminate
Alzheimer's disease through the advancement of research, to provide and
enhance care and support for all affected, and to reduce the risk of
dementia through the promotion of brain health. Our vision is a world
without Alzheimer's. For more information, visit alz.org.
Alzheimer’s Impact Movement
The Alzheimer’s
Impact Movement (AIM) is a nonpartisan, nonprofit advocacy organization
working in strategic partnership with the Alzheimer’s Association. AIM
advocates for policies to overcome Alzheimer’s disease, including
increased investment in research, improved care and support, and
development of approaches to reduce the risk of developing dementia. For
more information, visit alzimpact.org.
Contact: Alzheimer's Association
Media line: 312.335.4078
Email: media@alz.org
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