Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, June 27, 2019

Stroke rehab at Moriarties live jazz night

Don't do this, I'm not medically trained.  These are my ADLs, I expect answers.
  1. I open my left hand and place it on my left thigh. It lasts about 5 minutes before spasticity sets in and pulls it off. I expect that every stroke therapist in the world should know the exact amount of time(hours, days, years) I need to practice that to cure that spasticity.
  2. I passively flex my four fingers thousands of times. I need to know exactly how many times I need to do this to cure that spasticity. Should I be doing each finger separately? What about my thumb? 
  3. Walking to the bathroom through crowded tables after a couple of beers is excellent balance therapy. I've done this dozens of times. My doctor should know exactly how many beers or wine I should have to make this balance therapy as effective as possible as fast as possible.
  4. Clapping is totally impossible. What is the stroke protocol that will fix that?
  5. Beer glass sweating recovery.
    A major problem which my therapists did not cover. Napkins stick to the bottom of the glass and you look extremely silly drinking beer with a napkin dangling in front of you. There is no way I can get my left arm/hand to stay on the table, much less place it in position to hold the napkin down. So the pinky finger gets the call to separate itself from hand and peel the napkin off.  The cardboard coasters do not have this problem since I can usually hit the stuck coaster against another friends glass to knock it off.
    There is an appalling lack of protocols to address this issue. It is impacting my social connections and thus ruining my stroke recovery.
  6. I can't carry my beer glass and food to another table in one trip.

2 comments:

  1. "Walking to the bathroom through crowded tables after a couple of beers is excellent balance therapy. I've done this dozens of times. My doctor should know exactly how many beers or wine I should have to make this balance therapy as effective as possible as fast as possible."

    I'm pretty sure they'll never even attempt to answer that one.

    ReplyDelete