Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, June 27, 2019

WSO Advocacy Toolkit

In case you want to beat your head against a wall by trying to get the WSO to actually listen to survivors. 100% recovery, NOTHING LESS.  I'm advocating for the WSO to put together a strategy for 100% recovery.  This is just deflection from them actually doing the hard work of solving stroke. Survivors need to be in charge.  A 5 step program for solving stroke here: See how easy it is? WSO, are you that fucking stupid that you don't understand how to solve stroke?

Damn it all: stroke is easy; 5 steps.
1.  Describe the problems exactly.
2.  Write thousands of RFPs to researchers to solve those problems.
3.  Fund them with foundation grants.
4.  Write stroke rehab protocols based on the research.
5.  Get the Nobel prize in medicine  


A Nobel Prize awaits. Isn't that enough incentive? Or is this all just too fucking hard for all these MDs and PhDs working on stroke? Do you need a stroke survivor to lead you?

WSO Advocacy Toolkit 

The WSO Advocacy Toolkit is for individuals and organizations seeking to advance stroke policy, elevate the issue of stroke to improve stroke awareness, prevention, treatment and support by driving change through governments and institutions.
This toolkit will help you advocate effectively for improvements in the health system to address stroke (e.g. develop population based policies that will reduce stroke, ensure better access to evidence based stroke treatments, secure resources to develop stroke rehabilitation and support services) in your region.

After using the Advocacy Toolkit to complete your 9 Step Advocacy Plan please email it to campaigns@world-stroke.org to review and provide feedback.

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