Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, June 24, 2019

Lived experience of stroke report - Stroke Association of the UK

At least they are trying to understand stroke deficits and help survivors. I see absolutely nothing like this from the National Stroke Association, the American Stroke Association, or the World Stroke Organization. They shouldn't even have stroke in their names, they are useless for survivors. 

Lived experience of stroke report - Stroke Association of the UK

In 2018, we conducted the biggest ever survey of stroke survivors and their carers to find out more about their lives. Over 10,000 people closely affected by stroke in the UK took the time to share their stories with us.
We now know more about the everyday experiences of those living with the effects of stroke, which can sometimes last a lifetime.
We will share what we learnt in four chapters throughout the year. The first chapter of this report looks at the hidden effects that stroke can have on its survivors.

Chapter 1 - Hidden effects of stroke

While some effects of a stroke may be obvious to others, many effects like emotional changesmemory loss and extreme tiredness are harder to see.
We know that the hidden effects of stroke can turn people’s lives upside down. We are dedicated to helping stroke survivors and their families lead the best life possible.
With time, courage and the right support, stroke survivors told us that they start to feel like they are on the road to recovery.
Read chapter 1 - Hidden effects of stroke, below:
https://www.calameo.com/read/004683391fcad73f7d00c

Report results

Click here to see the results in Wales: English version | Welsh version

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