http://gerontologist.oxfordjournals.org/content/early/2016/11/04/geront.gnw135.abstract
- Barbara J. Lutz, PhD, RN, CRRN, FAHA, FAAN*,1,2,
- Mary Ellen Young, PhD3,
- Kerry Rae Creasy, PhD, ARNP2,
- Crystal Martz, MSN, RN,2,
- Lydia Eisenbrandt, MA1,
- Jarrett N. Brunny, MPH3 and
- Christa Cook, PhD, RN, MPH2
+ Author Affiliations
- ↵*Address correspondence to Barbara Lutz, PhD, RN, CRRN, FAHA, FAAN, School of Nursing, University of North Carolina-Wilmington, 601 S. College Rd., Wilmington, NC 28403-5960. E-mail: lutzb@uncw.edu
- Received April 14, 2016.
- Accepted July 21, 2016.
Abstract
Purpose: As the
population ages, older adults are more often living with functional
limitations from chronic illnesses, such as stroke,
and require assistance. Because stroke occurs
suddenly, many stroke family caregivers in the United States are
unprepared
to assume caregiving responsibilities
post-discharge. Research is limited on how family members become ready
to assume the
caregiving role. In this study, we developed a
theoretical model for improving stroke caregiver readiness and
identifying
gaps in caregiver preparation.
Design and Methods: We
interviewed 40 stroke family caregivers caring for 33 stroke survivors
during inpatient rehabilitation and within 6 months
post-discharge for this grounded theory study.
Data were analyzed using dimensional analysis and constant comparative
techniques.
Results: Caregivers
identified critical areas where they felt unprepared to assume the
caregiving role after discharge from inpatient
rehabilitation. Steps to improve preparation
include (a) conducting a risk assessment of the patient and caregiver;
(b) identifying
and prioritizing gaps between the patient’s
needs and caregiver’s commitment and capacity; and (c) developing a plan
for improving
caregiver readiness.
Implications: The
model presented provides a family-centered approach for identifying
needs and facilitating caregiver preparation. Given
recent focus on improving care coordination,
care transitions, and patient-centered care to help improve patient
safety and
reduce readmissions in this population, this
research provides a new approach to enhance these outcomes among stroke
survivors
with family caregivers.
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