Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, January 30, 2018

Running around the World to Speed a Cure | FoxFlash

Look at what can occur when a disease foundation has a strategy and the research to followup that strategy. Our fucking failures of stroke associations can't even copy successful non-profits, they are that fucking bad. And our boards of directors don't seem to know how bad they are.
http://view.michaeljfox-email.org/?qs=e1d9f57aa35e84b824006637d7e8878238e01f1fbde6a9e4a0e0d1e5c08258eff599948f87ebd31e8c353caccc2d27d443c422340bc7901f20b61e4ef3f946cbe9f669e953e5d2296bbf44071afb047b

$24-Million Public-Private Partnership Expands Investigation of Parkinson's Disease

Posted by 
Maggie McGuire Kuhl
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$24-Million Public-Private Partnership Expands Investigation of Parkinson's Disease
The Michael J. Fox Foundation (MJFF), the National Institutes of Health (NIH) and five life sciences companies today announced a public-private partnership to advance understanding, measurement and treatment of Parkinson's disease. The latest focus of the NIH Accelerating Medicines Partnership (AMP) model, this new AMP PD project will apply cutting-edge technologies to tease apart microscopic differences in the cells of people with Parkinson's disease (PD).
MJFF and the five industry partners are contributing a combined total of $12 million over five years to AMP PD. NIH's National Institute of Neurological Disorders and Stroke (NINDS) will match those funds with an additional $12 million contribution.
The first phase of the project is an investigation of previously collected data and biosamples using state-of-the-art "omics" technologies (e.g., genomics, proteomics, metabolomics) to define the molecular fingerprint of Parkinson's disease. Understanding the molecular differences in Parkinson's can illuminate ways scientists may measure, track or treat the disease.
The partners initially will fund analysis of data and biosamples from (i) the MJFF-led Parkinson's Progression Markers Initiative; (ii) the NINDS Parkinson's Disease Biomarker Program; (iii) BioFIND, funded by MJFF and NINDS; and (iv) the Harvard Biomarkers Study.
"The Michael J. Fox Foundation, the National Institutes of Health, industry partners and thousands of research volunteers have built robust datasets and biosample banks ripe for inquiry with the latest technologies. Leveraging those previous investments and partnering together can move us faster toward greater understanding of Parkinson's and therapies to slow or stop disease, patients' greatest unmet need," said Todd Sherer, PhD, MJFF Chief Executive Officer.
"AMP PD is the latest iteration of our longstanding alliance with The Michael J. Fox Foundation and would not have been possible without previous investment in these large-scale studies and the contributions of thousands of research volunteers," said NINDS Director Walter Koroshetz, MD.
A cornerstone of AMP PD, the Parkinson's Progression Markers Initiative (PPMI) is an $80-million longitudinal biomarkers study using standardized methods to collect robust data and a multitude of biosamples from more than 1,500 volunteers enrolled at 33 clinical sites around the world. The availability of these samples was a driving factor in the partners' decision to invest in AMP PD. Additionally, PPMI set standards for biosample collection and storage, which allows AMP PD scientists to compare results across studies.
In line with MJFF and NIH open-access policies, the partners will make data and analyses generated through this program publicly available to the broad biomedical community through the AMP PD Knowledge Portal, developed and made possible by an in-kind contribution of software and services by research organization Verily.
NIH launched the Accelerating Medicines Partnership program in February 2014 with initiatives focused on Alzheimer's disease, type 2 diabetes, and rheumatoid arthritis and lupus.
PPMI is recruiting people of Ashkenazi Jewish descent with a connection to Parkinson's or Gaucher disease. Take a brief survey to see if you may be eligible to participate.

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