Deans' stroke musings: Facing up to stroke – help someone you know, someone you love, maybe even yourself

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, August 23, 2018

Facing up to stroke – help someone you know, someone you love, maybe even yourself

Well it used to be 1 in 6 would have a stroke per WHO, now it seems 1 in 4 will have a stroke. I have no clue where that comes from and NO place to go to get it verified. Our fucking failures of stroke associations are no place to go to to get stroke information. I never use them as a source for stroke for anything, they are completely useless except as money wasters.
https://noijam.com/2018/08/22/facing-up-to-stroke-help-someone-you-know-someone-you-love-maybe-even-yourself/

By NOI Group, August 22, 2018

Strokes hurt and we all know someone who has had one. ONE in FOUR people worldwide will have a stroke during their lifetime. This is hot off the press from the Stroke Society of Australasia conference in Sydney this month. It hurts in many ways – stroke sufferers are 2-3 times more likely to develop chronic pain than non-stroke sufferers (Klit et al 2011). We know too little about this pain. It’s swept under the carpet and doesn’t get a serious mention in stroke guidelines.
Skilled and up-to-date therapists have made treatment inroads into chronic back pain, and neuropathic pain states such as complex regional pain syndrome and phantom limb pain. We believe post-stroke pain should be treatable, especially if we know more about it.
We have been building the largest database ever on characteristics of stroke pain (and an early peek at the data hints at a revolution in care).
We seek your help:

We need more people with chronic pain anywhere in their body so we can utilise some powerful group comparison statistics.
We need more data from stroke sufferers

This is the last call for this study, so please share this. Ultimately, the data you provide could help someone you care about or even yourself.
The study is online and takes 15-20 minutes. Come on!
-David and the NOI team
Klit H et al 2011 http://doi.org/10.1371/journal.pone.0027607