Deans' stroke musings: Minister meets with Tipperary stroke survivor over national strategy

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, September 29, 2022

Minister meets with Tipperary stroke survivor over national strategy

If that strategy is not 100% recovery then it needs to change to that. Yeah, there will be a lot of caterwauling from stroke medical 'professionals' but the strategy should be for survivors not the tyranny of low expectations that has forever been pushed on stroke survivors.

Minister meets with Tipperary stroke survivor over national strategy

Check this out!

Minister for Health Stephen Donnelly

Martin Quinn

13 Sep 2022 9:24 PM

Email:

news@tipperarylive.ie

Tipperary Town stroke survivor, Martin Quinn, recently had an online meeting with the Minister for Health, Stephen Donnelly, to discuss issues around stroke and for the need for the publishing of the National Stroke Strategy along with an implementation plan and full funding of the strategy.

The meeting which took place on Tuesday, August 30, was arranged by Jackie Cahill, TD, and attended by Dr Ronan Collins, Director of Stroke Services/Consultant Physician at Tallaght University Hospital, Kathryn Reilly, Policy and Legislative Affairs Manager with the Irish Heart Foundation, Chris Macey, Director of Advocacy and Patient Support at the Irish Heart foundation, by officials from the Department of Health and Integrated Care and by Ryan O’Meara from the Office of Deputy Cahill.

A lot of the discussion centred around the National Stroke Strategy and the delay in its publication and implementation plan.
Martin Quinn said that he believed that the strategy is the linchpin to all stroke services and that there was an urgent need to ensure that there was no further delay in the strategy being published and implemented.

“It is in the Programme for Government and recently Taoiseach Micheál Martin said that the Government is fully committed to implementing the plan.

“If you look at our stroke units for example; 80% of units are understaffed and over a third of people don’t get into a stroke unit and post stroke rehab services especially in areas of aphasia and psychology are poor.(NO mention of recovery!)

“The need to address the long-term persistent deficits in stroke support and rehabilitation in the community including post discharge services and support pathways including a right to a discharge plan and regular follow up, are all critical components that the strategy must address.

“Without the strategy we don’t have a plan and the inevitable spill over from that is the serious effect this will have on other services in acute hospitals,” said Mr Quinn.

Chris Macey of the Irish Heart Foundation supported the call for immediate implementation with full funding.
Kathryn Reilly of the Irish Heart Foundation also supported the need for publication and funding of the strategy.

AWARENESS OF APHASIA

Martin Quinn also highlighted the need for a full conversation around awareness campaigns for stroke and the importance of including awareness of aphasia.

“If the recent publicity regarding the diagnosis of Bruce Willis with primary progressive aphasia is anything to go by then we have a clear need to include awareness of aphasia and of the type of aphasia related to stroke in any campaign.

“Any national campaign around stroke awareness needs to include aphasia as a key component,” continued Tipperary Town’s Mr Quinn.

In response the Minister said that the Government is fully committed to implementing National Health Strategies including the National Clinical Programme for Stroke as set out in the Programme for Government - Our Shared Future 2020.

“Consultation and mapping of the strategy against national programmes of work such as the Enhanced Community Care Programme (ECCP) and Chronic Disease Management (CDM) Programme was required, and is now complete.

“The strategy which is now in draft form will need final approval before going for consideration to the Government.

“Once approved by the Government it will then go for publication,” said the Minister.

He could not give an exact timeframe for publication but was hopeful that there would not be any further undue delays.

The Minister is also to consider a request from Martin Quinn to open the second Regional Stroke Conference hosted by the South Tipperary Stroke Communication Group which is being planned for later this year.