Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, February 23, 2020

Poststroke fatigue and daily activity patterns during outpatient rehabilitation: An experience sampling method study

 What FUCKING stupidity, we have known for decades about poststroke fatigue. Survivors want solutions, NOT ANOTHER STUDY.

Poststroke fatigue and daily activity patterns during outpatient rehabilitation: An experience sampling method study

Archives of Physical Medicine and Rehabilitation — Lenaert B, et al. | February 19, 2020

A longitudinal observational study using the experience sampling method (ESM) was conducted to increase the understanding of poststroke fatigue by investigating its momentary and time-lagged relationship with daily activities. A total of 30 individuals with stroke were included. ESM is a structured diary method that provides evaluating real-time symptoms, behavior, and environmental characteristics in the flow of daily life, thereby capturing moment-to-moment variations in fatigue and related factors. In this study, individuals with stroke were followed for 6 consecutive days and were prompted at 10 random moments daily to fill in a digital questionnaire about their momentary fatigue and current activity using a mobile application: type of activity, perceived effort and enjoyment, and physical activity levels. This research demonstrates the requirement for ESM to design personalized rehabilitation programs and to capture fatigue and other patient-reported outcomes in daily life.
Read the full article on Archives of Physical Medicine and Rehabilitation

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