Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, December 15, 2014

Matt Lopez Q & A, President - National Stroke Association

Basic Stationery Top - Redesign 2010
Dear Friend,
Like so many other stroke survivors, my stroke was unexpected and very personal. It has been a humbling experience to join National Stroke Association and be given the opportunity to give back to the stroke community.
I’d like to meet you and answer your questions. Join me on Dec. 17 at 10 a.m. MST for a video chat.
Your voice matters to me and I want to know what your needs are, how National Stroke Association can serve you better, and share with you my long-term vision to meet the growing needs of the stroke community.
I hope you’ll register for this exciting opportunity to chat live with me on Wednesday.
Photo of Matt Lopez
Sincerely,
signed by Matt Lopez, CEO
Matt Lopez
CEO

P.S. - The video chat will be hosted on YouTube LIVE. You do not need a YouTube account or video equipment to participate.
 -------------------------------------------------------------------------------------------------------------
My comments in the question box. As author of Deans' Stroke Musings I have thousands of questions that need answering. But we'll stick with the major problems in stroke.
What are you/NSA doing to solve these?
0. There is no fast, easy and objective w
ay to diagnose a stroke. Will the tricorder xPrize solve this?
1. tPA may save your life but with tPA having a 88% failure rate for full recovery, it's pretty lousy to depend on that.
2. Your neurologist doesn't have any concrete stroke protocols to save all the neurons that are dying in the first week. Neuronal cascade of death(5 causes).
3. Your neurologist or physiatrist doesn't have any clue about how to get you to full recovery. (Ask them exactly how to do it), you'll get excuses.
4. Only 10% get to full recovery..
5. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
6. Nothing to alleviate your fatigue.
7. Nothing that will cure your spasticity.
8. Nothing on cognitive training unless you find this yourself.
9. No published stroke protocols.
10. No way to compare your stroke hospital results vs. other stroke hospitals.
11. Excuses abound, the main one being the stupidity of 'All strokes are different, all stroke recoveries are different'.


Even if you can't go, sign up and pepper him with questions.
If you have a question you would like to ask Matt, please email it to events@stroke.org.

No comments:

Post a Comment