Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Tuesday, September 20, 2016

Online articles about preventing Alzheimer's disease offer poor advice, research finds

Well shit, then come up with correct advice, don't just fucking bemoan the poor advice out there. Solve the damned problem, don't just bypass the shit in the grass, pick it up and properly dispose of it.
http://www.news-medical.net/news/20160914/Online-articles-about-preventing-Alzheimers-disease-offer-poor-advice-research-finds.aspx
New UBC research finds that many online resources for preventing Alzheimer's disease are problematic and could be steering people in the wrong direction.
In a survey of online articles about preventing Alzheimer's disease, UBC researchers found many websites offered poor advice and one in five promoted products for sale--a clear conflict of interest.
"The quality of online information about preventing Alzheimer's disease ranges," said Julie Robillard, assistant professor of neurology at UBC with the Djavad Mowafaghian Centre for Brain Health and the National Core for Neuroethics. "The few websites offering high-quality information can be hard to distinguish from the many low-quality websites offering information that can be potentially harmful."
Today, 564,000 Canadians are living with dementia but the number is expected to grow to nearly one million in the next 15 years as the population ages. Alzheimer's disease is the most common form of dementia but there is a lot of uncertainty about what causes the disease and how to protect yourself from it. Previous research has shown that about 80 per cent of people, and half of older adults, turn to the Internet for health information.
Robillard and undergraduate student Tanya Feng examined almost 300 online articles about preventing Alzheimer's disease. They found websites with high-quality information often provided high-level advice suggesting individuals consider lifestyle modifications like managing their diabetes and exercising regularly.
The researchers identified a few common red flags for low-quality information, such as websites recommending products for sale alongside the content. They found this type of conflict of interest in one in five websites. Other signs of low-quality information included websites with very specific recommendations and nutritional information.
"Many red flags were not specific to what they were saying, but rather how they were saying it," said Feng. "For example, using strong language like 'cure' or 'guarantee', promoting their own products, and relying on anecdotal evidence instead of empirical research is suggestive of poor-quality information in online dementia information."
The researchers say this type of information can also be costly with people sinking money into products with little or no scientific evidence to show that they are effective. More concerning, however, is that the advice can cause anxiety and may impact the physician-patient relationship. Patients may sometimes feel they cannot trust their physician if they disagree with the recommendations or patients may not inform their physicians that they have changed their daily habits.
The researchers are developing a tool called QUEST, a simple test of six questions that anyone can use to help people recognize high-quality information online.
Source:
University of British Columbia

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