Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Friday, September 23, 2016

Teenage stroke survivor calls on Government to adopt national strategy as 43 per cent of North-East victims feel "abandoned"

NO, YOU write the stroke strategy focusing on results. Because if you let the government write it it is going to suggest processes and guidelines. Totally fucking worthless if the government does it.
Results like:
1. 50% of survivors get to full recovery.
2. tPA fully reverses the stroke 50% of the time.
3. Spasticity is cured, not ameliorated.
4. Fatigue is cured, not told to exercise more.
5. Aphasia is cured in 6 months.
6. Dementia is prevented in 100% of stroke cases.
http://www.thenorthernecho.co.uk/news/14736101.Teenage_stroke_survivor_calls_on_the_Government_to_adopt_a_national_strategy_after_hearing_43_per_cent_of_North_East_stroke_victims_feel__quot_abandoned__quot_/
A 14-YEAR-OLD stroke survivor and her family have called for a new national stroke strategy to be adopted by the Government.
Emily Simpson, of Eaglescliffe, was just ten when she had a stroke while walking with a friend but, despite her huge efforts to counter the condition, has only been granted one hour of physiotherapy a fortnight.
Now Emily and her entire family are backing a campaign by the Stroke Association to help other victims which include 16,200 people in the North-East.
Emily's father, Terry, noticed Emily's face had drooped and she was limp down one side when she collapsed near her home.
While still in hospital in Newcastle a week later, Emily had a second stroke. One of the nation's leading stroke specialist doctors was immediately on hand and she had emergency surgery. She was diagnosed with Central Nervous System Vasculitis and was left with an acquired brain injury which has affected her communication and cognitive skills.
The teenager had been receiving weekly hydrotherapy sessions but now receives just one hour of physiotherapy each fortnight.
The Stroke Association’s latest campaign, A New Era for Stroke, urges the Government to commit to a new national stroke strategy. A current scheme, called the National Stroke Strategy for England ,was introduced to improve standards in treatment and support for people affected by the brain malfunction, but is due to end in 2017. The association want a new strategy to now be adopted.
A recent Stroke Association survey found that in the North-East, 43 per cent of stroke survivors felt abandoned when they left hospital. The charity is warning that stroke survivors’ recovery will continue to be put at serious risk unless the Government commits to a new strategy.
Emily’s mother, Carolyn Simpson, said: “When we saw Emily had the symptoms of stroke, we couldn’t believe it as we thought she was far too young. We had no idea a fit and healthy ten-year-old could be affected by the condition. We knew Emily needed the best possible treatment and care if she was going to recover.
“Emily initially had an hour of hydrotherapy each week, and now has just one hour of physiotherapy per fortnight, which isn’t enough. Fortunately she’s been able to go back to school but we still haven’t found a speech and language therapist who can support children with aphasia. That’s why we’re supporting the Stroke Association’s call for a new national stroke strategy in England.”
Alexis Wieroniey, Deputy Director of Policy and Influencing at the Stroke Association, said: “We urgently need as many petition signatures as possible to make sure these voices are heard by the Government, so it’s great to have the support of Emily and her family."
The petition can be found at stroke.org.uk/petition.

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