Deans' stroke musings: Using the Preparedness Assessment for the Transition Home After Stroke Instrument to Identify Stroke Caregiver Concerns Predischarge: Uncertainty, Anticipation, and Cues to Action

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, January 18, 2021

Using the Preparedness Assessment for the Transition Home After Stroke Instrument to Identify Stroke Caregiver Concerns Predischarge: Uncertainty, Anticipation, and Cues to Action

If your stroke hospital has to use this on you it means THEY HAVE COMPLETELY FAILED AT GETTING YOU RECOVERED. The result should be to decertify the hospital as being completely incompetent.

Using the Preparedness Assessment for the Transition Home After Stroke Instrument to Identify Stroke Caregiver Concerns Predischarge: Uncertainty, Anticipation, and Cues to Action

15-Jan-2021 8:40 AM EST, by Association of Rehabilitation Nurses

Research Alert

Stroke survivors and their caregivers face enormous challenges as they transition from the IRF to home. As rehab nurses, we make every effort to educate caregivers about what to expect at home, but often they are unprepared to the role they are committing to. The Preparedness Assessment for the Transition Home After Stroke (PATH-s) is a 25-item instrument designed to assess stroke survivor caregiver readiness to care for the stroke survivor when they are discharged home. The study involved interviewing caregivers after they had completed the instrument and before their family member was discharged. During the interviews, participants were asked to 'think out loud' about what their thoughts were when responding to each question. The data the researchers received improved the item validity and relevance of the instrument, and also helped make the caregivers aware of the concerns they had about the caregiving role.

Abstract

Purpose

The aim of the study was to better understand caregivers’ concerns about long-term implications of stroke and the caregiving role after completing the Preparedness Assessment for the Transition Home After Stroke (PATH-s).

Design/Methods

In this qualitative study, cognitive interviews were conducted with 20 stroke caregivers who completed the PATH-s tool as part of an instrument validation study. Data were analyzed for salient themes related to their perceptions about stroke and the caregiving role.

Findings

Interviews yielded robust narrative data describing how the PATH-s items aided caregivers in recognizing potential issues and concerns about stroke and the caregiving role. Caregivers experienced uncertainty about the long-term stroke prognosis, which provoked anticipation and cues to action to begin addressing their concerns.

Conclusions/Clinical Relevance

Completing the PATH-s helped caregivers identify concerns regarding the long-term implications of stroke and their caregiving role. It may serve as an important assessment tool to assist rehabilitation nurses to better understand and address caregiver needs predischarge.