Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, July 25, 2022

1 in 3 stroke survivors may suffer from a treatable condition

 So YOU, as the American Stroke Association have completely fucking failed to get protocols on these written, distributed and implemented. Will you please step aside and let better persons run it; i.e., stroke survivors? We would never drop the ball like this proves.

1 in 3 stroke survivors may suffer from a treatable condition

New resources from the American Stroke Association aim to help people reduce and treat spasticity, a debilitating condition commonly experienced after stroke(But survivors want spasticity cured, not just treated. Or do you never talk to survivors?)

DALLAS, July 18, 2022 — In the first year following a stroke, upwards of 1 in 3 people will experience a treatable condition called spasticity that is described as muscle stiffness, pain and difficulty doing activities they were able to do before their stroke[1]. The American Stroke Association, a division of the American Heart Association, offers updated evidence-based tools and resources for stroke survivors to manage spasticity with their health care team.

More than 3 million stroke survivors may wrestle with reduced independence and increased reliance on caregivers due to spasticity[2]. The condition is particularly common in younger stroke survivors[3] like Hub Miller who suffered a stroke at age 41.

“Spasticity changed my life and adds an additional hurdle to my stroke recovery,” said Miller, a husband and dad from Indianapolis. “Without being able to open and close my left hand, I can’t write, type or drive like I used to. Those are things most of us take for granted until we can’t do them.”

If left untreated, spasticity can cause painful and debilitating bone and joint deformities, so experts stress the importance of seeing a doctor as soon as any symptoms develop.

“After a stroke, the way your brain communicates with your muscles may change,” said Richard D. Zorowitz, MD, volunteer chair of the American Heart Association Stroke Council Rehabilitation and Recovery Committee, chief medical informatics officer and outpatient attending physician at MedStar National Rehabilitation Network. “While there’s no cure for spasticity, working with your care team to find the best treatment options for you can help provide comfort, relief and independence.”

Benefits of successfully treating spasticity often go beyond the physical. 

“When it’s difficult to do everyday tasks like shower, brush your teeth, dress, cook meals, feed yourself or even walk across a room safely, it’s not just physical health that suffers. Mental health can be impacted, too,” said Zorowitz.

Management plans for spasticity may include targeted injections of botulinum toxin, oral medications, intrathecal baclofen pump therapy, physical therapy or other methods to improve the muscle's ability to stretch and regain fuller range of motion[4]. Modifications around the home such as assistive devices and other adaptations to increase independence and safety may also help.

The American Stroke Association offers resources including a Support Network of stroke survivors and caregivers who are dealing with the unpredictability a stroke brings, checklists to help understand spasticity, discussion guides to take to your next doctor’s visit, resources on spasticity for stroke support group leaders and articles on treatment and care options.

If you or a loved one is dealing with spasticity after a stroke, talk to your doctor or health care team about your options to treat and manage it. Get the resources and tools you need at www.stroke.org/spasticity.

The American Stroke Association’s spasticity education through the Together To End Stroke initiative is made possible with support from Ipsen.

Additional Resources:

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About the American Stroke Association

The American Stroke Association is a relentless force(Sorry, that is a complete lie, you're fucking useless for survivors!) for a world with fewer strokes and longer, healthier lives. We team with millions of volunteers and donors to ensure equitable health and stroke care(NOT RESULTS!) in all communities. We work to prevent, treat and beat stroke by funding innovative research, fighting for the public’s health, and providing lifesaving resources. The Dallas-based association was created in 1998 as a division of the American Heart Association. To learn more or to get involved, call 1-888-4STROKE or visit stroke.org. Follow us on Facebook and Twitter.

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