should be easy to prove it works, measure TNF before and after the
shots. 5 minutes is ridiculous. But he'll get me to write about it,
providing more credulous patients for his operation.
Your stroke association should answer all these questions for you, but they won't.
http://www.sfgate.com/health/article/How-etanercept-is-aiding-stroke-victims-4128887.php
Here are some criticisms of earlier tries at using it for Alzheimers
Miracle Cure For Alzheimer's Disease?
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Read all the answers on the next one.Can enbrel cause brain lesions?
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From an Alzheimers forum below. Read it all.
My inclination, dear Cherie, is that this whole Enbrel thing is a scam. A way for some shady folks to con desperate people out of money. This sort of scam has been run over and over again. There are always plenty of gullible people out there. Sick people. Wanting cures for everything.
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This from a stroke forum is very telling; Notice the total lack of facts, If true this would be Nobel prize material.
http://www.healthboards.com/boards/stroke/855208-any-experience-perispinal-etanercept.html
I'd like to hear what you think of it after you've had the consultation. I took my husband, who had a stroke a few months ago, for a consultation, and we were disappointed that we were unable to see a doctor or anyone except a physician's assistant, who would not answer any questions at all(Extreme red flag - run away). Not sure what the purpose of the consult was, other than to tell us that if we wanted to see a doctor and get answer to questions it will cost $400. I've done quite a bit of research online
and continue to be dubious, in part because if it works as well as they claim, it would be all over the news. I'd love to believe it, but ---------------------------------------------------------------------------------------------------------
In one of my earlier posts on this someone anonymously replied with this comment;
Dean, this study, like most are solely authored by Dr.Edward Tobinick, Dermatologist, Institute of Laser Medicine (hair removal) who also are the same staff and home of Institute of Neurological Recovery which also went under the name Institute for Neurological Research. Tobinick began making claims in 1998 for the off-label use of the then new rhumatoid arthritis drug Etanercept (Enbrel). Tobinick promoted the use of this drug for disc-related conditions such as chronic back pain. Tobinick created his own 'patented' administration of the drug and called it DiskCure with claims of relief within minutes. Tobinick advertised the treatment and charged patients thousands of dollars for this 'unique' treatment. Tobinick self autored studies to support these claims. A few years later Tobinick played the same trick, this time it was Alzheimer's, and after a number of years of causing havoc, Tobinick would appear to have prioritized his new target STROKE and Traumatic Brain Injury. A new patient can expect to pay around $4500 for an intitial consultation and 1st injection. Etanercept (Enbrel) carries a Remember a vial of Etanercept (Enbrel) costs about $230. Just because it is expensive, does not mean it works. These scams cost some money to run. In recent years I have observed Australians being targetted successfully by Tobinick with his scams be they for Alzheimer's or STROKE etc. Here are a list of chronic conditions which Tobinick claims to treat.
Alzheimer’s Disease
Traumatic Brain Injury
Recovery after Stroke
Vascular Dementia
Frontotemporal Dementia
Primary Progressive Aphasia
Etanercept (Enbrel) carries a Boxed Warning
rare cases of tuberculosis
risk of serious infections that may lead to hospitalization or death.
Challenging Tobinick's claims and practices feels like a gnat fighting on the back of an elephant, but maybe someday the past will catch up with Dr. Edward Lewis Tobinick, Dermatologist.
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Here is the article pointing to the original research;
http://www.springer.com/about+springer/media/springer+select?SGWID=0-11001-6-1394543-0
Someone not involved with him needs to deconstruct the clinical trial to see if the data supports the conclusion.
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