I can easily see being able to reuse this for stroke survivors. What is your doctor doing to follow this and create a cognitive stroke protocol for you? ANYTHING AT ALL?
http://www.alphagalileo.org/ViewItem.aspx?ItemId=151130&CultureCode=en
Experts in Nottingham are leading a major new study into how people
with multiple sclerosis (MS) could overcome problems with attention and
memory associated to their condition.
The Cognitive Rehabilitation for Attention and Memory in people with
Multiple Sclerosis (CRAMMS) trial will evaluate the effectiveness of new
strategies to improve and compensate for these difficulties and aims to
improve the quality of life for the patient.
The trial is being led by Nadina Lincoln, Professor of Clinical
Psychology in the Division of Rehabilitation and Ageing at The
University of Nottingham and Dr Roshan das Nair, consultant clinical
psychologist at Nottingham University Hospitals NHS Trust and honorary
Associate Professor in the University’s Division of Rehabilitation and
Ageing.
Funded by the National Institute for Health Research (NIHR) Health
Technology Assessment (HTA) programme, the trial will begin recruiting
participants later this month.
Professor Lincoln said: “The purpose of our research is to help
people with multiple sclerosis boost their everyday memory so they can
get on with their lives and do the things that people take for granted,
for example remembering to pick their children up from school, turning
the stove off, or knowing where they have put things.
“It will also provide them with strategies to enable them to concentrate on information without getting distracted.”
Memory and attention problems are common complaints for those who
have multiple sclerosis. More than 100,000 people in the UK have
multiple sclerosis and of these, 50,000 will have problems with
attention and memory at some stage in the progression of their
condition.
Very few people with multiple sclerosis get treatment for cognitive
problems in usual clinical practice, despite some evidence that
cognitive rehabilitation may help reduce problems in attention and
everyday forgetting. However, cognitive rehabilitation for people with
multiple sclerosis has not been demonstrated to be effective or
cost-effective in large-scale randomised controlled trials.
The study will be exploring the benefits of using internal memory
aids, such as mnemonics — using patterns, words and images to remember
details — and external aids, such as diaries, mobile phones and cameras.
The researchers will also be looking for other imaginative ways to help
improve memory and reduce forgetting.
The study is being conducted in collaboration with Swansea
University, Nottingham University Hospitals NHS Trust, Sheffield
Teaching Hospitals NHS Trust, The Walton Centre NHS Trust, and
University Hospitals Birmingham NHS Trust.
They will recruit 400 volunteers, aged 16 to 69 years, from NHS
hospitals, rehabilitation centres, multiple sclerosis charities, and web
forums. About half the volunteers will then receive a 10-week group
intervention at one of the study centres in Nottingham, Sheffield,
Liverpool and Birmingham. The groups will focus on strategies to improve
attention and to reduce memory problems in daily life. The remaining
volunteers will continue to receive their existing level of care.
If this study confirms the benefits of cognitive rehabilitation it
could lead to a change in clinical practice in the NHS and abroad. The
researchers will also use questionnaires to determine the
cost-effectiveness of this intervention, and to get feedback from those
taking part in the trial to establish if intervention improved their
quality of life.
http://www.nottingham.ac.uk/news/pressreleases/2015/march/11m-study-to-reduce-cognitive-problems-in-people-with-ms.aspx
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 29,116 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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